a couple of questions

[Oana_Stafford]

Hi all and Happy New Year!

I have been diagnosed with Endo following an MRI and the doctor reckons I need to have an op to take out my left ovary and a tube.

I have some questions I was wondering if anyone can answer.

1 - I am 45 - I am not on Menopause yet but once that comes, does Endo get any better?

2 - can the endo cysts appear on the skins? Around the time I started having excruciating pains I had like a big spot on my thigh - on the inside - and when I popped it a lot of dark red blood came out

3 - I was told one of the scars is around the back passage. If I take out the left ovary and endo is not coming back, would the damaged / scar tissue connecting those points heal / turn to a cyst?

not sure if there are any specialists around but maybe someone can answer. My worry is the NHS Gyno is not an endo specialist and then they may not be able to answer all these questions. Thanks

[BloomingMarvellous]

First things first for a lot of women menopause does bring change and relief or some relief. For others like myself absolutely not it’s gone on full warpath from perimenopause on without an easy care pathway. Do not be misled that it’s an automatic!

Yes , people do get endo skin lesions. It needs to be checked and biopsies taken for that and other similar areas. It’s rare but yes, you’re not mad it’s a thing.

If the scar is towards your back passage it means they will need to assess the level of involvement in the bowel and whether it has gone into the pouch of Douglas and gone onto develop into DIE . This can start attaching to the uterus sacral ligaments and is blooming painful causing nerve pain through the pelvic area , down the legs and hips. It will be of concern and they should have a bowel surgeon on hand to assist with surgery. This isn’t abnormal but it would be worth a discussion pre surgery to discuss what they may end up having to do if there is considerable spread. Better to have the information before than wake up to shocks.

I really hope it’s a minor spread for your sake and your recovery is quick x

[Oana_Stafford in reply to BloomingMarvellous]

Hi there. Thanks so much for your answer. I will definitely ask as many questions as possible before the op.

I’m sorry yours got worse after the menopause so there goes my hope then that I will get rid of it after that starts.

Can I ask what is that acronym DIE coming from, please?

[BloomingMarvellous in reply to Oana_Stafford]

Deep Infiltrating Endometriosis. Can’t been seen on the surface tissue but is a complete bugger - even gets around and into nerve tissue. Not a picnic.

[BloomingMarvellous]

You might find the following a super useful resource for understanding more about endo and self support you can explore. Katie Edmonds Heal Endo. Well researched and as a practitioner I know it’s founded on solid research.

[Oana_Stafford in reply to BloomingMarvellous]

Thanks for all your replies, hun. Very concerning but very informative.

[BloomingMarvellous]

It’s pants but then if they get it early hopefully it can be stopped in its tracks …