No support

[Ilbc]

Hello,I'm new,

Undiagnosed but it's looking very likely, currently waiting on gynaecology referal.

My parents don't believe my symptoms and I just wondered if anyone else experienced this. I have had flare ups and pain episodes over the past couple years.

I had to come out of uni at the start of this year and didn't get out of bed for about a month due to a flare up. I came home to my family home where my parents are and they saw me at my most unwell. It has now become unspoken between us. They disregard any symptoms I talk about and it is at the point that we no longer speak about it. I am unsure what to do with this.

[SeaHorse6]

Welcome. I'm not sure if I can help with much advice but wanted to write & say I'm so sorry for the way your parents are responding, at a time when you absolutely need to feel cared for & understood. It must already be very hard to have had to take a pause from your studies due to the severity of your symptoms. Never let anyone question what you are experiencing, only you know your own body. You will find many sympathetic, understanding people here in this group.

How is your GP? Is (s)he someone you could talk to about needing support while awaiting your gynaecology referral? If not, is there another GP at your practice that might be better? Try to be confident & push for the help you need, even if it doesn't come naturally. After 2 GPs that didn't take me seriously (& made me feel worse) I found a 3rd one who is very caring as well as knowledgeable & seeing her has made a big difference on the endometriosis journey. Sending hugs 🤗

[SavageGold]

Hi there,Yes my step dad was pure evil. One day he made me try to go for a walk when I was ill. I couldn't. The look on his face I thought he was going to beat me. he did all kinds of abusive things though. He used to give my dinner to the dog as a punishment. My mum also used to leave me passed out on the floor in the freezing kitchen where I'd been crouched on the floor leaning on the cupboards waiting for the toaster to pop. I stopped making toast to go with my pain killers as it was so awfully cold and just ate yoghurt and honey for years. I was skin and bone.

My brother was lovely though, when he came back from uni he looked after me where he could. I remember him putting a girly movie on for me and making me hot chocolate and carrying me through to the living room where he'd made me a comfy bed on the sofa so I wasn't alone in bed all day.

I'm sorry your family are awful too. I hope you find light at the end of the tunnel. I don't understand why people are so cruel to women. If they know women have a painful thing going on, and they only need to look at us to see how I'll we are, why do get labelled drama queen's with low pain thresholds? Pain is pain and should be acknowledged. I'm sorry you are suffering from the bottom of my heart