ESPriT 2 Study

[SimzTH]

Hi all,

I have been struggling with ‘chronic pelvic pain’ aka suspected endometriosis for around 2 years now and this week have been placed on a waiting list for my first laparoscopy (I am 23 y/o)

I have been informed about the above study, which is to determine the effectiveness of removing superficial peritoneal endometriosis, and I am struggling to make a decision. I really want to take part to help women who are experiencing this moving forward, as I have really struggled and a part of the study is to see if there are any blood bio markers that can help to diagnose. However, I am not sure if this is the right thing for me.

I am due a follow up call with my doctor next week and will ask more questions then before I make a decision but I just wanted to see if anyone else is in a similar position!

Thanks

[PunkyPeanutButterCup]

Hello I am 22, nearly 23 had my first and so far only lap done when I was 20. They only found superficial peretonial endometriosis with me, only on my pelvic wall and used ablation. I think it's important they learn more about the disease and the effectiveness of ablation. That being said you need to think primarily about yourself and what's right for you. I'm glad I had my lap and got some answers for my pain but going into it I was quite naive and didn't know what I know now and personally would've held out to have my lap slightly later down the line. Just think it's important you review all your options.Hope this helps you out in anyway x

[SimzTH in reply to PunkyPeanutButterCup]

Thanks for your reply from your experience, why do you feel like it would’ve been better to wait rather than have a lap at our age?x

[PunkyPeanutButterCup in reply to SimzTH]

Pain subsided for me for just over a year actually and then came back with vengeance and more symptoms. The response I'm getting now is no one wants to perform another lap as the Endo was considered mild and until I consider and if I can't fall pregnant naturally. In my opinion I also feel like from what I've learnt now that ablation is probably not the best way and excision surgery is far better. But that's just my opinion. I feel like it's important to be diagnosed and for symptoms to be heard and taken seriously. Just feel like the fundings not there, leaving not many options!

[Cocoacupid]

hun I was due to do the trial too but in end had to have emergency lap where they found deep infiltrated endo which was why I had been suffering for so many years. I was told to do the trial as I would be seen quicker as the nhs waiting list was about two years. As I said I couldn’t wait for the trial to find out what was wrong I was told the outcome of the lap. The pain got to the point I wanted to end my life as I could hardly walk. I would have done the trial as I wanted to see if it would help other women. But my locum doctor wrote to them and said I couldn’t wait for the trial as I was also bleeding heavily even with the coil . I think 🤔 it’s up to you to make the decision if you do choose to have the lap they won’t tell you what they find until the end of the trial and they won’t tell you whether you had it removed or not till also the end of trial and if you need more surgery they will let you know also at the end of trial. I think the trial is important as they want to see if removing superficial endo is helpful or not . But I think at the end of the day it’s your decision also don’t let them persuade you to do it if you really are unsure . 🫤 if the locum hadn’t spoken to the gynea team I would have been under the trial as they said the diagnostic lap would be done quicker than the diagnostic lap on the nhs. But it’s totally your decision no one else can make that for you. But honestly don’t let them bully you into something if you don’t want too. Xx