legs and knees in so much pain - Endometriosis UK

Endometriosis UK

72,493 members52,981 posts

legs and knees in so much pain

Summer95 profile image
3 Replies

From my waist down I’m constantly in pain. My legs and knees always hurt and feel so inflamed as well as my lower back. I wanted todo something today but was in too much pain. It sucks and I’m not even 30. It’s honestly scary. I was diagnosed with endo when I was 18 and had surgery but it seemed to make things worse.

Written by
Summer95 profile image
Summer95
To view profiles and participate in discussions please or .
Read more about...
3 Replies
butterfliez profile image
butterfliez

Hi sorry to hear you’ve been suffering this type of pain from your endo , I can’t seem to find much relief for this either

I also get terrible aches/pains in my legs a week before/ during my period & during ovulation, I’ve also get terrible back aches. It’s so frustrating isn’t it.

It is frightening as we never know what’s going on inside & why we get all these pains. When I was first diagnosed in 2019 I never had all of this, mainly pain on my period & when going to the toilet.

Did you have endo removed at your surgery ? X

Summer95 profile image
Summer95 in reply to butterfliez

Yes they found the indo then removed it around 2014. I had gained a bunch of weight after due to being in a lot of pain but I eventually lost it bc I was always nauseous so it was hard to eat. They keep wanting todo another surgery but there’s nooo way I’m allowing that to happen again

I’m the same, I’m constantly in pain down my legs and also my arms. It’s fatigue related to the condition (I think) :(

Not what you're looking for?

You may also like...

So much pain!

Hi everyone, new here, just found this forum because I am really struggling with this whole thing...

In So much pain :(

I'm on my period at the mo and I'm in agony. I can't move without wanting to cry, it feels like I'm...

2 weeks post Laparoscopy, still in so much pain!

hi all, hope you’re all well. I had my first laparoscopy almost 2 weeks ago now, the surgeon...

So Much Pain

Currently sat at my desk at work crying to myself because I’m in so much pain... I’ve done the...

So much pain

Hi, had my 1st lap 5 months ago. First two periods were normal with no pain. Third period started...