zoladex hasn’t worked?: I’m in my second... - Endometriosis UK

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zoladex hasn’t worked?

RedPanda31 profile image
4 Replies

I’m in my second month of zoladex 3.6 (while I wait for hysterectomy date)

When I had my first one I experienced more pain then normal and still had bleeding, I’m lead to believe this is fairly common for the first time.

Had my second one and started with my tibolone and again 7-10 days later pain and bleeding again!😔

Is this normal?

Does mean it hasn’t worked?

Is there anything else they can try other then the zoladex?

X x

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RedPanda31 profile image
RedPanda31
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Rocket14 profile image
Rocket14

Hiya. It took at least 3 to start working and it did help with the pain. I had to come off it in the end due to the side effects, which were not great. I went cold turkey with only pain killers and periods etc returned within 6 weeks.

I had my full hysterectomy 3 weeks ago. So I'm recovering atm.

I hope you get on OK with Zoladex.

Leona

Moon_maiden profile image
Moon_maiden

Zoladex never worked for me, tried the whole six but screwed with blood pressure and hormones.

The Gynae said it can take 2-3 months sometimes.

RedPanda31 profile image
RedPanda31 in reply to Moon_maiden

Did they try anything thing else?

Is ther anything else?

Or do I just have to hope they will bump me up the waiting list🤞🏼

Moon_maiden profile image
Moon_maiden in reply to RedPanda31

Painkillers!? Not that they are much better. What are you taking?

Is it an Endo expert doing your surgery? With colorectal? It’s important they remove every scrap of Endo, also I’d recommend asking them to remove all adhesions whether Endo or not.

Ask about cancellations and getting pre op done in case of cancellations. Personally I don’t believe waiting lists actually exist, obviously a list does but not in any particular order. If we are willing to wait they are too. I was told I could ring weekly to check, although that was a different op. My hysterectomy was in 2020 when covid was about.

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