Battle of the endo!: I've had a bad few... - Endometriosis UK

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Battle of the endo!

valgal76 profile image
9 Replies

I've had a bad few days with Endo, it comes at any time, and it feels like its everyday now. Plus i have tinitis recurring all day, then i have schizophrenia invading my mind, creating me to battle with depression. But the main thing bothering me more is the Endo. The chronic ripping burning pain in my left and sometimes also my right, and right on my womb area, or upper part of my pubic area. So alone with it sometimes, feels good to talk about it sometimes

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valgal76 profile image
valgal76
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9 Replies
Apricottree profile image
Apricottree

Oh gosh so sorry to hear your suffering and feeling alone! I am also struggling with the intense pain of endo and finding codeine is only thing to take the edge off at the minute. It's horrible. Sending best wishes and hope today is a better day for you x

Cailleach profile image
Cailleach

Where are you at with your endo journey? Have you been seen by a Gynae, or received treatment in the past or are you waiting for treatment? It is worth seeing your GP about getting effective pain meds and also a referral to Gynae if you are not already referred.

I am sorry you have so many issues to deal with, that must make things even more difficult x

valgal76 profile image
valgal76 in reply toCailleach

Hi Cailleach, i was diagnosed with endo by my hospital gynea doctor in 2013, but i've had it much longer. All i was told by him was to keep taking the painkillers, which i do, but sometimes it takes a while to kick in. Some days i go without pain, then other days i can have it every day, all day. Its such a pain in the arse!, thank you for taking the time to write to me

Cailleach profile image
Cailleach in reply tovalgal76

If you haven’t been seen by then, it is worth going back to your GP and asking for a referral to Gynae. Treatment options have probably moved on, and you need an up to date assessment and treatment plan. Xx

valgal76 profile image
valgal76 in reply toCailleach

Yes, i agree with you, i'll try and get my doctor to refer me again, couldn't hurt to ask i suppose

me94 profile image
me94 in reply tovalgal76

I can also relate. My pain is mostly everyday but do get the odd pain free day every now and then. Being in pain is so draining. Maybe ask to be referred back to gynae or endo specialist for further treatment. Hope you're okay

valgal76 profile image
valgal76 in reply tome94

Hi me94, i am thinking of going back to the doctor about it, it was ripping or stabbing pain in my lower groin today, it lasted about 5 minutes, then thankfully went away. We do suffer terribly, and there is nothing anyone can do about it. So i just keep taking the painkillers for now!

endowarrior12 profile image
endowarrior12

I’m so sorry to read your post. I know you can feel so lonely living with this, but there’s always a kind and sympathise ear here for you. I suffer daily with endo symptoms too and it’s so difficult. Please don’t feel alone, I’m always here if you need a vent or someone to talk to

valgal76 profile image
valgal76 in reply toendowarrior12

Thank you endowarrior12, i do suffer all the time, like we all do i think. All i can take is the blessed painkillers and that's all i've had. I've had no offer to blast the endo out of my womb, i read somewhere that that can happen, but it's never been offered to me. Doctor's are no help sometimes, although the gynea doctor did let me see what they look like. It stunned me, they just looked like microscopic black dots!!!

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