In-active endometriosis

[Lovehearts-]

I had laproscopy 4 days ago, they removed a chocolate cyst and found in-active endometriosis by my ovary. They didn't remove this inactive endometriosis, what is in-active endometriosis and will that reactivate?

I'm currently on the pill for symptoms but concerned when I come off the pill symptoms will start again.any advice would be helpful 😊

[TogetherWeAreStrong Moderator Endometriosis UK]

Oh, Lovehearts- welcome to the forum and for contibuting to the discussion. I honestly could not of answered you question, with such conviction prior to joining the forum.

I am very lucky to have had some extended pain free years, as a result of the medications that I was taking. I discussed with with my GP and we both agreed that I would stop taking them, but unfortunatley this is when the inactive endo started. I had not had a period in years, but after a few months of not takintg the meds, my pain started, so this was a case of inactive endo resurfacing.

Do what feels good for you meds or no meds and we are all here to support you x

[Lovehearts- in reply to TogetherWeAreStrong]

Hello, Thank you for replying, ahh ok so did you have in active endo as a result of medication suppressing it? How did they know it was inactive? Is it because symptoms suppress?

Did you go back on the medication because your symptoms started again? Sorry for all the questions.

I was quite surprised they didn't remove the inactive endo when they did my op on Monday, just in case it activates again when I come off the pill which I'm planning to do

X

[TogetherWeAreStrong Moderator Endometriosis UK in reply to Lovehearts-]

Make sure to ask your consultant why this decision was made as I really don't know what would be behind that. It was inactive as I had not had a period for approx 8 years, the meds did work that way, my pain came back quite quickly as it does take sometime for you cycle to start regulating. So it was always there, in a kind of remission and when my hormone balance changed, it was back to where I had been before I started the treatment.

No apologies please, to be able to communicate with others about this subject is great for me. In a nutshell, I took a position working in India for 6 months (tramadol is available to buy, co codamol is not) and I then had to relocate back to the UK, so that's when I started from scratch, visit with GP to start the refferal process and my consultant was amazing!