Endometriosis question: Hi I got diagnosed... - Endometriosis UK

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Endometriosis question

KerryJarvis94 profile image
8 Replies

Hi

I got diagnosed with a bad case of endometriosis on the 19th of january 2016 and they started me on the treatment with the marina coil and the pill.

I am currently on my break for the pill and I am extrememly dizzy and feeling nausious. shaking and hot spells?

Anyone got any advice?

Thanks

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KerryJarvis94 profile image
KerryJarvis94
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8 Replies
amelia89 profile image
amelia89

If this is the first time you've been on the pill it could be this. The first 3 months taake some getting used to, there are a lot of new things for your body to adjust to. When I first went on the pill my mood swings were awful, I felt really depressed, my head was constantly aching and I lost a lot of weight. There are lots of pills available. It may just be a case of finding the right one for you

KerryJarvis94 profile image
KerryJarvis94 in reply toamelia89

Hey hun I went hospital last night as nearly passed out and they said I can't have the treatment as I am a high risk factor for a stroke. The pills are risking the rest of my body xx

KerryJarvis94 profile image
KerryJarvis94

I am in Devon. I ended up in hospital in April 2015 pregnant and I had a cyst on the right folopium tube which was making it irrupt. So I had to have a termination at 16 weeks pregnant and then surgery to take out the damped tube in June. Then in January 2016 they diagnosed me with a bad case of endo as it's grown from nothing to being really bad (as in the point where they were thinking about putting me through my menopause at 22 ) in just 9 months. As endo usually takes 11 years on average they were pretty shocked. I ended up in hospital last night and I am a high stroke factor so I can no longer have treatment. Xx

Karinyaa profile image
Karinyaa

Hi. Are they sure medicals are enough for a bad case of endo!?

I was diagnosed on endo several years ago, having some minor symptoms only. These were from time to time pains and painful intercourse. After some time my endo turned to be a bad case too. And everything ended in surgery.

Well, I'm not saying medicals aren't appropriate for you. All in all we're not experts here. But still if you feel that bad you must clarify what's wrong. Is this ok being the individual feature? How long will it take to bring you to a normal state? What if another option must be found for you? You should discuss all this with your endometriosis specialist. Do not keep silent as treatment not only plays on our side. Be careful and have another consultation as quick as possible.

Hugs, dear xx

KerryJarvis94 profile image
KerryJarvis94 in reply toKarinyaa

thankyou hun trust me im going to be asking an awful lot of questions i am not going to go through my menopause unless i absolutly have too.

thankyou hun xx

KerryJarvis94 profile image
KerryJarvis94

Thankyou hun, I have arranged an appointment with my speicalist on the 15th of March.

Going to be looking for lots of different options with this.

Unfortunaly last night when i ended up in hospital i was on the combined pill so the coil and the pill to stop and shrink the scar tissue (endo) but unfortiunatly they have had a bad effect on me and because of bad medical history the options where an operation or this treatment, now the treatment is ruled out because i was increasingly high risk of a stroke its just the surgery left biut the surgery was a no go when i had my appointment on the 19th jan 2016.

Thankyou anyways xx

KerryJarvis94 profile image
KerryJarvis94

Ok Thank you very much. Well in October 2014 I had a miscarriage then in April 2015 I had a termination due to a fatal situation with a cyst and folopium tube. The folopium tube was taken out in June 2015 had a scan in December 2015 when they found the endo. That's all I know :( I will do that Thank you xx

KerryJarvis94 profile image
KerryJarvis94

Yes I am going to ring on Monday and get them to post it to me all of it.

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