Stopping Prostap, How do I stop Hrt? Do I... - Endometriosis UK

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Stopping Prostap, How do I stop Hrt? Do I wean off slowly? I'm unsure and scared xxx

Victoria101986 profile image
17 Replies

I've had Prostap injections twice now and really struggling mentally, I'm not having a third injection and therefore unsure how to manage the hrt side of things, I have Tibelone, has anyone had experience in weaning off when my injection has run its course, I struggle with depression and anxiety bad as it is and scared this may impact it more, I've spoken to the GP and they don't know, I can't get through to my consultant and needing advice from people who have experienced this, please help 🤞🥰 xxx

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17 Replies
Mindfullness4791 profile image
Mindfullness4791

I stopped my hrt quite abruptly whilst on this treatment. I found a breast lump, which thankfully came back clear. They said it was caused by the HRT/Prostap so I stopped it straight away.I also suffer with anxiety/,depression and did struggle to sleep for about a week and my mood has been low but it is starting to improve. I stopped 6 weeks ago.

Good luck 🙏❤️

Victoria101986 profile image
Victoria101986 in reply toMindfullness4791

Hi, thanks so much for your reply, it's such a scary unknown and anxious I will go worse, I am on sertraline and 2 x anxiety tablets already whilst taking the hrt, I'm hoping to carry on taking the hrt for a week after the Prostap injection has ended then half the tablets then stop, hopefully weaning off may help, I hope so anyway, thanks again ❤️ xxx

Mindfullness4791 profile image
Mindfullness4791 in reply toVictoria101986

I was on the Estradiol gel so not sure if that's different from the Tibilone. I hope it all goes okay. Take care 💗 xx

Victoria101986 profile image
Victoria101986 in reply toMindfullness4791

Fingers crossed 🤞 I'm so done with all this rubbish us women have to go through, stop the world I wanna get off lol thanks again ❤️ xxx

Mindfullness4791 profile image
Mindfullness4791 in reply toVictoria101986

Bless you. I know exactly how you feel! I don't know what I would have done without the lovely community on here 💗 xx

Victoria101986 profile image
Victoria101986 in reply toMindfullness4791

I knowww, this group is amazing and so much help ❤️ xxx

Aoifel73 profile image
Aoifel73

Hi Victoria. I understand how you feel. I've had 2 Decapeptyl injections and I'm also on Tibolone and my mental health has plummeted. I've had depression in the past but this is on another level. It feels like it has changed something in my brain. It's horrific and it really worries me. I'm not going to have another injection, I can't take the risk. It did stop my bleeding thankfully but the effect on my brain has been horrendous. I hope you start to feel better soon. X

Victoria101986 profile image
Victoria101986 in reply toAoifel73

Awww sorry to hear your going through this aswell, it's changed who I am, I'm not able to concentrate, everything around me annoys me, I'm not functioning like I normally do, its awful isn't it, non of this was explained to me, your right it's next level isn't it, I spend all my free time hiding away in my bedroom, either asleep or just playing games on my phone to pass the time and to try and concentrate on something that isn't negative, it feels like your lost, your thoughts take over and make everything feel like it's the end of the world, I really hope for the both of us stopping the injection and hrt helps, big hugs 🤗❤️ I feel you I really do xxx

Prettythings1 profile image
Prettythings1 in reply toVictoria101986

its like you read my mind I was about to write exactly this ♥️ x

Prettythings1 profile image
Prettythings1

following x

Prettythings1 profile image
Prettythings1

I have been on ProStep injections since last June. I have an appointment this week with my consultant to discuss what happens next

they have definitely had a negative impact on my mental health. None of this was explain to me what you said

I have not been able to take HRT it has been a daily struggle

Victoria101986 profile image
Victoria101986 in reply toPrettythings1

Awww no 😢 tbh I don't even know of the hrt does anything, I'm still sweating, extremely anxious about that so then I become more anxious thinking people can see I'm anxious, what a viscous circle 🤦🏻‍♀️ I'm not doing it again, I've lost myself 😔 get this rubbish dissolved and gone, hopefully be free of it in approximately 8 weeks, I read somewhere it stays for 5-6 weeks after it's ended, I'm on my 3rd injection and definitely my last, the consultant won't even know or be aware I've not had it with the way I have to inform them I'm due it 🤦🏻‍♀️ I'm going to wean off the hrt rather than going cold turkey, don't wanna add more crap to my life, I'm actually done with the whole thing now, all I want is to be pain free and happy, it's not a lot to ask but for someone with endo it's seems it is xxx

Prettythings1 profile image
Prettythings1 in reply toVictoria101986

they told me it is a miracle drug

Its caused me such depression and the anxiety it awful

Send me a message if you want to chat xx

Victoria101986 profile image
Victoria101986 in reply toPrettythings1

Ohhh I got told that old chestnut too 🤦🏻‍♀️ no thanks not having it again, counting down the days until it is finished and out of my system 😁 hopefully I'll feel me again and happier ❤️ thanks 😊 xxx

Prettythings1 profile image
Prettythings1

ive got my appointment tomorrow to decide what happens next i am dreading it I ideally want a hysterectomy xx

Lothead01 profile image
Lothead01

Hi

Just coming on to ask how people are feeling now off the injection? I had to have 1 injection which I’m coming to the 4th week but my anxiety has been horrendous… very weird thoughts, not myself at all feeling really flat. I couldn’t cry for the first 2 weeks and still struggling now. Then extreme low mood which was crippling.

I’m just looking for some reassurance that I will go back to myself (health anxiety on top) and how long did it take for this drug to leave your system. I wasn’t told of any of these side effects.. I wasn’t even told it stops your hormones so this has really floored me :-(

Thanks

Victoria101986 profile image
Victoria101986 in reply toLothead01

Hi Lovely,I'm glad your asking because I can promise you when that horrible drug leaves your body you will 100% feel like you again, you will feel so much better, I hate that the drs put us through this and do not offer help afterwards, I refused to have another after suffering so bad just like you, I had 4 months of hell, I live to tell the tale, I'm back to me, you'll see a huge difference within a week or two with not having it, I will manage the pain anyday rather than go through that again, sending big hugs, keep your head up until this runs out, promise you it's only temporary,.your not going insane, you will feel better soon xxx

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