Taking the absolute p**s

[emcoll]

My last visit to the gynae was...interesting. She basically didn’t listen to a thing I had to say, didn’t care that I was uncomfortable with certain options - when I said this she got arsey. One good thing she did say was that if I had any problems then to call and go straight back, she put me on some sort of open appointment so that I could get through directly to her. I called her about four weeks later when I just couldn’t cope, and found out she’d gone for the entire month of March. The earliest I can get in in the end of April (right before I’m supposed to go on holiday) and her response was “well i can’t help your pain” and she put the phone down on me. I’ve had to ring again today and sit there begging for another appointment which she refused to give me. I’m sorry but I’m sat here in the worst pain I’ve felt, I can’t go to A&E because they just tell me it’s a gynae problem and I’m just expected to sit here for another six weeks? Not on NHS, not on.

Em

[danijonez]

I've been a&e twice with the pain and both times they refferred me to emergency gynae which i see the next day in hospital, what hospital are you going to? Is there a different one near you? Hope you get some relief soon x

[emcoll in reply to danijonez]

I’ve been in probably six time since the start of the year. Each time they tell me I can’t see anyone as there’s nobody around, so when I ask them to gangs my appointment they look at me in disgust. I go to xxxx hospital, I’ve been to xxxx a few times but they always refer me back to xxxx as they have all my details and know everything better. It’s just ridiculous now as I can’t even walk or barely stand on my own. I can’t eat much anymore eat I feel so much bigger and heavier - I feel disgusting. Thank you x

[danijonez in reply to emcoll]

In January I was in so much pain I was pretty much bed bound for the weekend so on Saturday I rang out of hours where a doctor had to come out to see me at home where he gave me morphine and made my gp emergency refer me for a lap which takes about 6 weeks so had it end of feb. Maybe try and get a doctor out tommorrow they have to do something for you, it’s not fair how you are being treated. I was talking to a doctor on the phone when I rang out of hours and she was gobsmacked how I’ve been treated so she wrote a stern letter to my gp as well and so did the doctor that came out to me that day. It’s a right pain how much we have to push for things to have anything done at all xx

[emcoll in reply to danijonez]

It honestly is ridiculous. Like yeah okay they’re very good at their job and they probably see this everyday, but it’s no excuse just to fob us off. Been suffering with this for 7 years now since I was 11, and it took 6 years to get my first operation. Now they were on about a second one but it’s taken nine months to get this far. It’s so ridiculous. I might try and ring one tomorrow. Like my GP was great, she was the one who first thought of this but she said it’s out of her hands now I’ve been to gynae. I’m just so fed up and it’s having an affect on my relationships with everyone cause I always feel like a burden to everyone. I’ve lost three jobs now because of this. X

[danijonez in reply to emcoll]

I know how you feel I had 5 jobs last year and I’m currently unemployed, it sucks, and I’m only 19. I always feel like my boyfriend is going to leave me because I’m such a burden, he hates seeing me sad and in pain so I just have to pretend I’m happy around him and I hate it. Not once has a doctor asked how I’m emotionally doing, never been offered any support with being so down. I hate how I was treated in hospital end of feb and I don’t really get the full results of my lap till 8 weeks with my consultant and it’s only been 2. My mum rang the out of hours for me because I was so anxious, she did over exaggerate but it got me very far. I would’ve been waiting till October time for my diagnostic lap if I didn’t get out of hours to see me. I felt like they were a lot more understanding than anyone else I’ve seen x

[emcoll in reply to danijonez]

I just..I’ll go through a time where I get a job and feel great - I always warn them about the endo before. Then a few weeks in I have a bad time..end up having a week off or so, then they pretend I never told them about it and fire me. I never get asked how it affects me emotionally either. I just can’t...I can’t do it anymore and I just want to hide from everyone x

[cmbxm]

Go to a&e and tell them what she said and she might get a ‘bollocking’ of sorts and start taking you more seriously when you call! Xx

[emcoll in reply to cmbxm]

I’m just so sad these days. I spent hours on the phone to her today just to get told she won’t do anything yet..I’m on the brink of breaking down x

[cmbxm in reply to emcoll]

do whatever you have to do to protect your mental and physical health, if you think you need stronger pain meds go to a&e! Don’t let anyone shame you and ask for a second opinion or to see an oncall gynaecologist if they try to send you home, I cannot guarantee they will 100% help you, but this helped me from my own personal experience, try and get an emergency gp appointment if not, things will get better I promise you but you’ve got a long way to go right now, but trust me you will get there! Xx

[emcoll in reply to cmbxm]

Thank you so much cx

[Starry]

Why does she say she won't see you and does not not want to do do another scan or lap? was it very recent your last one?

If the pain is from adhesions or neuropathic functional pain is there not a specialist pain clinic she or if she is unhelpful your gp can refer you to for pain assessment and management.?

nhs.uk/Livewell/Pain/Pages/...

So far as I know specialist pain clinics is a national nhs thing, not just London, I live in Norfolk which is sparse in places and it still has one. I saw a specialist who identified my pain types, recommended a drug for my functional/neuropathic pain, offered injections for my real pain (nerve inflammation near my coxxcyx), and onward referred me for pain physio and pain psychologist.

[emcoll in reply to Starry]

My last operation was in April last year, yet it’s taken me nearly a year to get back and see her because she kept delaying the appointments. She knows how much I suffer because it’s stage 4 but she just keeps cancelling everything then when I ring up she gets all arsey on the phone. She said next time I have to have my operation I have to go to Stoke which is about two and a half hours away. She’s being ridiculous

[Starry in reply to emcoll]

Is it a bsge centre? If not then you could get your GP to refer you to your closest bsge one instead?

Or else can you contact pals to try to get support for better treatment?

[emcoll in reply to Starry]

Honestly i have no idea. I just know that it’s the one at my hospital who did my surgery last year. I just don’t know what to do anymore

[Starry in reply to emcoll]

You can check for local bsge centres here

bsge.org.uk/centre/

You can check to find your local pals service here

nhs.uk/Service-Search/Patie...

Ask your GP about the pain management service too, don't just suffer sweetie xxx

[emcoll in reply to Starry]

Thank you xxx