endometriosis and numbness / pins & needl... - Endometriosis UK

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endometriosis and numbness / pins & needles in hands and feet

CCWildSwimmer profile image
15 Replies

Hi all,

I have had numbness and tingling in various ligaments, especially my fingers for several years and I always put this down to poor circulation and/or possible raynauds (not diagnosed. However, I was recently diagnosed with rectovaginal endometriosis and have been wondering if there could be a link. Does anyone else experience the same and know of there is a link or explanation?

Many thanks 🙏

15 Replies
Endowarrior1807 profile image


I also have rectovaginal endometriosis and also get the numbness and tingling.

I’m not sure if there is a link or if it’s a coincidence though.

CCWildSwimmer profile image
CCWildSwimmer in reply to Endowarrior1807

Thanks! I was low iron after my recent hysterectomy, so going to book to check this again. Might be worthwhile checking vitamin and iron levels with your gp also given below comments x

meg73 profile image

Hello! I recently started experience this and put it down to some weird link to my endo but then went to my doctors and got a blood test and had B12 and iron deficiency which apparently can cause this. Since being on supplements, its calmed down! Probably worth a check if you're low on anything x

CCWildSwimmer profile image
CCWildSwimmer in reply to meg73

Thanks - I was low iron after my op but didn’t realise that those symptoms related to that… will ask to get vit b12 and iron levels checked again x

L110 profile image

Hi, I also had this and have moderate endo and had wondered the same. However I was found to have very low Vitamin D levels and after taking supplements the tingling improved dramatically.

CCWildSwimmer profile image
CCWildSwimmer in reply to L110

Thanks - I’m going to get my bloods done again to see if something is going on x

635703 profile image

Hello there. I’m in the middle of having an MRI and blood tests.

I have wondered as I waiting for an ADHD assessment too…..ADHD, EDS, Endo? I’m just hearing there’s some evidence and how valid, I haven’t fact checked it all out. Yet.

Hope I have not given anyone an existential crisis!!

Endo is The Bitch that just keeps on giving 🙄😳🫂💁🏻‍♀️💔

CCWildSwimmer profile image
CCWildSwimmer in reply to 635703

it’s rubbish, isn’t it!! I hope blood tests and MRI etc all go ok ❤️

635703 profile image
635703 in reply to CCWildSwimmer

having such a rough day and it’s rubbish and here’s to anyone else having a rubbish day

TogetherWeAreStrong profile image
TogetherWeAreStrongModerator in reply to 635703

Hi 635703 I am so sorry you're having a rough day and a rubbish one at that! I have been really bad with pain, bleeding and CCWildSwimmer the strange numbness and tingling this week. Today, I am doing okay...but still just dealing with it hour by hour. I have a frozen pizza for tea tonight and have picked out a film for later, that's helping me. Do you ever find that helps ladies?

635703 profile image
635703 in reply to TogetherWeAreStrong

I’m sad to hear of your struggles too lovely but so pleased you responded and I love your self compassion and nurturing approach to difficult days. Brilliant stuff 💗

I’m going to have to walk 1 miles to the GP Surgery and 1 mile back for my zolodex injection and praying it doesn’t rain. On top of struggling to walk with pelvic pain. I may use diclofenac pain meds before I go.

When I come back, I have a shake as I’m doing Fast 800, todays a fasting day of 600 calories, as I’m now pre-diabetic and plan to shed weight via NHS weight management service. But I will have a cup of tea in my favourite big mug, use my weighted blanket to calm me down to self regulate, and watch tv and have an early night.

TogetherWeAreStrong profile image
TogetherWeAreStrongModerator in reply to 635703

Thank you for your kind words, it warms my heart, people understand the words that I am saying but not what they actually mean. I love your plan for the day, it's a real spring day in my neck of the woods so I am sending some over to you! An early night any day of the week is music to my ears - thank you for contributing you just never know when you will touch that one person and you have done that for me today x

635703 profile image
635703 in reply to TogetherWeAreStrong

thank you and I really hope you are able to just switch off to it for your pizza and film night! I don’t know about anybody else, but I have to switch off intentionally and not watch the news.

I am really worried about the DWP changes as we can see they’re going to try to get disabled people into work. Hopefully they are educated before trying to do this. Ugh 😩 😭💔

I can nurture myself beautifully but I cannot change the moronic government stance on disability benefits. That’s something I have to let slide today. I hope The Psychologist’s and other professionals speak up on this. It’s not my battle to have and especially not today!

This has added to how crappy I am feeling because it hurts. Do they think we are at home sipping cocktails on the lawn?!


It’s such a bloody insult and I want to go back to work but….hello….waiting lists for starters!!

TogetherWeAreStrong profile image
TogetherWeAreStrongModerator in reply to 635703

I do have to switch off intentionally the same as you. But I lean into this environment of like minded people, as we are so honest as to the realities of our lives, it's not hypothetical

CCWildSwimmer profile image

thank you everybody for your help! I ended up in A&E last night as my numbness, pins and needles and faint feelings ended up in my first panic attack… it was truly awful x

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