Hi everyone, I'm experiencing symptoms of possible bladder Endo. I've had diptests and an ultrasound and they've all come back clear of infection. I had excision surgery for stage 4 last Feb but that involved bowel and rectum, I've never had bladder symptoms before. In December last year I started having a really sensitive bladder around my period, going frequently and filling quickly, or if not filling quickly like I had a UTI with pressure on my bladder. Since my February period though it didn't disappear after my period and I've got it all the time. I've also got a stinging sensation at the top of my vagina and occasional shocks of pain. The ultrasound radiographer told me there's no mass and the bladder wall looks normal so if it's there hopefully it's superficial. I'm awaiting an MRI and cystoscopy but wait times are horrendous.
Can anyone share their experience of bladder Endo please? I'm obviously terrified of them having to remove part of my bladder and having a catheter or this feeling never going away. I want to be as prepared as possible should it be there. Thank you x