hi everyone, looking for some advice & to see if anyone has the same symptoms as me.
I have been on the waitlist for diagnostic laparoscopy surgery for suspected endometriosis for over a year now and have been trying to get a diagnosis for around 8 years.
My symptoms seem to be getting worse recently especially ibs type symptoms around ovulation - is this common for anyone else with endo/suspected endo & if so do you have any tips for helping it? It adds to the pelvic pain and discomfort & finding it really hard to manage the pain and symptoms at the mo. When the pain is really bad it makes me feel quite alone as hard to explain to those around me so just wondering if anyone gets similar symptoms too?
any advice greatly appreciated, thank you 🤍
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Bea0503
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Hi, yes I have endo and experience this. To manage the IBS symptoms I just include more fibre in my diet around this time and avoid anything with wheat, I also drink water like a camel and this usually flushes me out. However, if it is really bad I take a laxative and this will get things moving.
I did speak to the doctors about this but haven’t been given anything as I am still chasing my colonoscopy for 2 years now. So that’s just how I have been managing with this.
hello! I get sharp stabbing pelvic pains around the time of ovulation and bloat up like a balloon! I don’t have any answers for you unfortunately, when I’ve mentioned it to gps they just say it’s “normal” I have my laparoscopy next month after a two year wait. But just wanted to say you’re not alone x
no! Nobody has ever mentioned it to me but I’ve heard about it on these threads, I’m guessing I’ll know after my lap. I’ve had an MRI and ultrasound which shows ovary stuck to uterus on one side and cysts, but nothing else has shown. You’d be able to see adenomyosis on MRI wouldn’t you?
Hi Bea0503 I had moderate-chronic IBS just before I was diagnosed with multiple uterine fibroids and stage 4 endometriosis. Although the IBS most likely caused by the fibroid that is pressing against the colon - blocking passage. I also had clinically large endometrioma from the endometriosis. And this one was pressing against the bladder and this one caused me pain constantly and gradually went worse - discomfort to moderate pain in one year. I thought I was probably eating too much, or poor lifestyle. My period has always been extremely painful, I always had to take a day off school and work to cope, but I thought that was normal. But now I know it isn’t! There’s no cure for Endometriosis and in some cases treatment could only help improving the symptoms. But we’ll take it right! 😃 We’re resourceful and will live life as best as we can despite… Though, I feel, it is worth monitoring in regular basis with ObGyn to ensure it doesn’t get worse and/or start affecting reproductive organs negatively if one wish to have children, in case there’s preventative effort that can be done. In my severe case I wish I see my ObGyn as often as I see my dentist in my earlier years. Because in recent times I had to have surgeries regularly (3ea in 4 years) to improve my fertility. On the IBS front, I’m currently taking the same measures as @TB2023 . I even have a preferred laxative 😅 Duphalac, which is a lactulose. I’m crossing my fingers so you get your diagnostic surgery soon! Maybe follow up with calling and writing. Don’t down play down your symptoms- tell them it has been getting worse over the period of x month; you had to increase the quantity of pain killer by x gram and you have been taking pain killers since xxxx.
I only take lax if it’s really bad. If I don’t have bowel movement for 2 days for example. But I do start taking paracetamol just before the period start- I normally get very mild pain to start with, when spotting before the heavy flow.
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