Ultrasound appointment

[M_B_]

After years of pain, food allergy tests and supposed IBS, I had my first significant appointment for endometriosis today, getting an internal and external ultrasound. Although I was pleased to hear that my ovaries and uterus did not look inflamed, I wasn't really told any other information and will have to wait to talk things through with my doctor.

I was disappointed when the technician told me they can't really see anything on scans like this and don't know why they get asked to do them, but the chances of them offering to do a laparoscopy are slim because of how invasive they are.

I left feeling a little bit lost - what if I do have endo but they don't deem it significant enough to properly investigate with a laparo? Do I just live in this no mans land of undiagnosed? How can you treat something without truly knowing what it is?

How difficult did you all find it to get a laparo? Did your results from your ultrasound differ to what was found in a laparo if you were offered one?

All advice welcome x

[Crazycatladyjones]

Have you not yet been rerederred to gyne? If not push for it.Same as you ive gone years and years having all kinds of tests been told IBS palmed off with buscopan and fibre gel, have had so many ultrasounds I can't keep count of, showing nothing at all yet I finally saw a decent Dr who suggested endo and I finally had a lap which found extensive endo all hid behind ovary and uterus in the pouch of douglas. You know your body and symptoms so if you belive its gyne related then u push for that referall and a lap xxxx good luck xxxx

[M_B_ in reply to Crazycatladyjones]

the doctor spoke to gynaecology, who recommended I go for the ultrasound. The ultrasound has come back clear and the doctor has said he will write to gynaecology again to see what they recommend the next steps are now.

Thanks for your support - it’s helpful to know that ultrasounds can come back clear even when endo is present. Hope you’re doing well after your lap! X

[Hidden]

I had us first then I was told I needed an MRI, MRI diagnosed endometriosis and now waiting to see gyni. My Dr arranged it. The green top paper outlines the best practice and MRI is the next step not a lap. Hth. I would keep returning to Dr until.you get one I had to see Dr three times three months running before MRI was ordered

[M_B_ in reply to Hidden]

I didn’t know MRI was an option for this, thank you for sharing that. I am hoping doc will be able to give me an appointment with Gynaecology to discuss things further.

Have you been offered a lap after MRI to treat what they found?

[Hidden in reply to M_B_]

I'm waiting to see the multi disciplinary team as the regular gyni won't touch me as it's recommended to have my ovaries removed and the endometriosis treated at the same time. If they can it'll be laparoscopic.

[MayM95]

you can’t see endometriosis from an ultrasound, it can only be diagnosed through a laparoscopy, so I would push for a laparoscopy! I was sent to gastroenterology for years and they never found anything, also palmed it off as IBS - once I suggested endometriosis, I saw a gynaecologist and he suggested a laparoscopy straight away because of all my symptoms! You know your body best, so keep pushing for it and stand your ground, I hope you get the help you need!! Xx

[Hidden in reply to MayM95]

Mine was seen very clearly on an MRI, during my research I saw they are reviewing the best practice at the moment and have rewritten the guidance. An MRI should be done before laparoscopy.