Endometriosis for 3rd time?

[Melbook]

Hello, I've not written before but have recently been reading a lot of your posts for advice/reassurance.

I am currently seeing my GP for suspected Endo.

I have the implant for contraception and she has put me on Cerazette for pain management. Previously had 2 Laps, the first (2015) was quite horrific and they had to 'unstick' my left ovary and zap away lots of adhesions. Second time (2018) just got a letter quoting 'adhesions' and no follow up.

This time around the pain is again on my left. GP referred me for an ultrasound, at which I was told BOTH ovaries have adhesions and limited movement. Never before has it shown up on USS. Does this mean it's severe?

I'm on my local NHS hospital waiting list for gynae clinic, however I've been told its a 52 week wait 🥺

Is an MRI the next step?

Do I go private and be seen/fixed 🤞🏼 sooner?

Has anyone had Endo shown up on USS?

Thanks, and sorry for the life story!

Stacey.

[JLT79]

hey, sorry to hear you’ve been through so much and that it appears to be back again. As far as I am aware, endometriosis doesn’t show on an ultrasound? That only shows cysts, fibroids etc.

I think a lap is the only way to diagnose endo? Might be worth checking with your gp what’s going on? 52 weeks wait is awful 😩

[Marcia71]

Lap is not longer considered the gold standard in diagnosis, nowadays ultrasound and mri are much better at diagnosing endo but they need to be done by someone trained to spot endo. If everyone is telling you it’s adhesions then it’s likely to be fibrosis caused by endo and some adhesions from previous surgeries but it could indicate quite severe endo. I’d say the best thing to do would be have a private ultrasound with someone specialised in spotting endo. There’s several in london but there are more around the country nowadays.

You’ll then know better what you’re dealing with and can be referred to the appropriate nhs Gynae - it’s likely you qualify for referral to bsge centre and an endo specialist. Otherwise it’s Gynae with special interest in endo.