Mental Health and Endometriosis

[JustLiLi]

Hello @ll

I'm new here..

Where to start..

My name is Lidia and I was Born in 1984 in Poland, I moved to UK in 2006

And I used to be bubble person, full of activities, working almost 60h weekly but then ...

My first symptoms of endo I remembered since I was 13 but diagnosed I was in 2016 now I have stage 3,

I can't move much from bed cose I'm in agony daily.

I lost job because of it and since April 2022 mentaly I can't take any more I'm waiting for referral for endo scan I know it takes time but how I can motivate myself to be strong? To some how fight this pain.

I have read books about endo I change diet, I start meditation even tried do yoga but unfortunately pain is every where, kidney, abdominal ,leg ,hand, head ..back

so can't do even daily routine without sweating and pain.

I had few laporascopy's and mirena coil now I'm on oral hormonal treatment and waiting for more..

How u managed live...

every single part of my life is destroyed because of this illness..help me to understand what I maybe not understand yet..

I'm sorry if I sounded chaotic but I'm on tramadol at the moment. I just want to know how I can change my Mental side situation..

and again be back on truck with my life..

Be myself again.

Lidia

[Dee_EndoUK Moderator Endometriosis UK]

Hi Lidia

First of all, a really warm welcome to the forum - thank you for sharing your story and I'm sure some of our community will be in touch soon with support and understanding for what you're going through.

Sorry to hear you are in so much pain. Have you tried using a tens machine? Many endometriosis sufferers find that this can help. On our website we also have a downloadable Treatment Pack, which contains a variety of suggestions for pain relief. You can download it at endometriosis-uk.org/treatm.... It also contains suggestions for complementary therapies that can help to improve mood - hopefully you find something that works for you.

It's good that you've tried yoga and meditation - please persevere with these, even if only for 10 minutes gentle practice per day. Dealing with endometriosis requires trying many different things and these little things can all add up and make a difference. Celebrate the little wins each day and be kind to yourself. Listening to a wellbeing podcast each day may also be worthwhile in terms of supporting your mental health and giving you strategies to cope.

Alongside our forum, we also have face-to-face support groups all over the UK, where you can discuss your symptoms and concerns with other sufferers. To find out if there's one in your area, just visit endometriosis-uk.org/find-a.... If there isn't one in your area, we also have an online support group.

Finally, if you ever feel like you're really struggling, please don't hesitate to call our helpline (0808 808 2227), which is manned most days by our volunteers - all of whom have personal experience of endometriosis. Details of the helpline and other forms of support can be found at endometriosis-uk.org/helpline

Take care, wishing you all the best x

[JustLiLi in reply to Dee_EndoUK]

Thank you for replying 💛I will check all the website and do as you suggested.

I'm happy I did first step.

Thank you for being with us endo fighters.

[Dee_EndoUK Moderator Endometriosis UK in reply to JustLiLi]

You’re so welcome! Sending love x

[TogetherWeAreStrong Moderator Endometriosis UK]

JustLiLi , so welcome and please feel free to share, be open and ask anything, you have nothing to lose, if we don't share, we don't learn more.