Just diagnosed, what next?

[Palomamensajera1_]

Hi everyone, I have just joined this group to learn from your experiences and share support. 30years suffering, belittle, and ignored by doctors. I had to pay for my own laparoscope one month ago. Multiple miscarriages all my life, no kids Doctors said I didn't have endo. Well results of my laparoscope say endometriosis level 4, both ovaries surrounded by endometriomas. I gave results to my for 20 years ginecologist he just said "I told you not to stop taking birth control. No treatment, no medications, no diet... there is nothing to control this illness? Why are we forgotten? Why endometriosis is not recognize like other illneses?

[TogetherWeAreStrong Moderator Endometriosis UK]

Hi Palomamensajera1_ thank you for joining us and also for posting. It's really important that we keep doing that, as you quickly realise that you are not the only one and there are people out there that do understand how you are feeling, and the impact that this condition has on you and your loved ones and work and how you live your life! It's a lot! Take your time and really explore the Forum, there is so much support here, ready and waiting for you, in your own time.

[Palomamensajera1_ in reply to TogetherWeAreStrong]

Thank you for your quick answer♡. Finally learnt how to see full posts and reading everything. We are warriors, we can do this.

[ChloeV]

Hi Paulina,

I had a very similar journey as you only being diagnosed in my 40s with stage 4 endo. The anger was and still can be overwhelming.

Speaking to younger doctors it seems like things are changing and the awareness of endo is slowly improving. I find some relief in that and it does give me more energy to keep going.

There is a lot of good information in this forum for you to explore treatment options and coping strategies for the multiple and complex effects of endo.

This is a great community to lean on when we struggle.

All the best.

[Palomamensajera1_ in reply to ChloeV]

Thank you! You exactly described how I feel. ♡

[ChloeV in reply to Palomamensajera1_]

sorry, just saw your name was spellchecked 🙃

[Palomamensajera1_ in reply to ChloeV]

no problem. I imagined. I'm 44 now and I like that there are now even instagram accounts of people openly speaking about it. Between my infertility, multiple miscarriages and endometriosis. I'm happy that I don't have to pass through all of this in silence.

[CryBaby91]

hi!

I just got diagnosed myself at 30 (31 next month) after many years of being told it was all down to my mental health. The gaslighting with endo is ridiculous! Sending love your way xxx

[Palomamensajera1_ in reply to CryBaby91]

So unfair the way we have been treated. I totally understand you. Lots of love for you too!! ♡♡♡♡♡♡

[Endo35]

firstly i would ask for another gyne specialist! No one deserved to be treated like that.

There are things that can help from surgical procedures to hrt however hrt will prevent you getting pregnant, i was told i would never have children due to the severity of my endometriosis however i do have three beautiful children! So there is hope. My issue was i could get pregnant but i misscarried very easily from loosing thwm at 3-6 weeks gestation to my worst which was twins at 20 weeks.

You juat have to be very perstistant