Help and advice : I would always class... - Endometriosis UK

Endometriosis UK

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Help and advice

Mim-Bailey profile image
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I would always class myself as having a high pain threshold, don’t make a fuss but over the years prior to having children I would have intermittent agonising episodes with my periods, not every month but they were immense when they did, I have would lay rigid sweating in pain, not the usual cramps by far but thankfully not often. My cycles were always sporadic for years, always late, never knew when it would arrive. An example of this is when I stopped having periods for almost a year for no reason. My G.P did nothing. I went on many many different contraceptive pills after to regulate them but caused havoc with my hormones and mood swings so stopped it. I Always had pms but it was manageable, no problems with other symptoms pre cycle but I then had my children and since that time my cycles are remarkable regular however everything else has changed! I have extremely intense moods that can be unmanageable and effect my life for almost two weeks, my husband calls it the two weeks of hell! I have massive bloating (the least of my problems) but it resembles when I was pregnant and now also suffer with sleep disruption, sore boobs, constipation, nausea, fatigue, lower back pain that just won’t go away even with pain relief and stops me doing my normal activities. I never had all these symptoms prior children. The first day of my period is like I’m having the entire period in one day and then spend the next few days with what I would class as a normal flow. I’m experiencing clots and floods that I can only describe are like the bleeds after child birth, very sudden and heavy floods where I’m soaking my clothes inside an hour of putting a new heavy flow towel on, blocking my shower drain, it’s a bit scary sometimes. The awful moment this week getting up from a meeting and seeing my chair red was so humiliating- I can’t use tampons anymore because the pain is horrific and feels like I’m pulling my insides out, it’s unbearable now. I have talked to my gp for years about my hormones and issues with my periods and they make me feel like I’m making a fuss about nothing. I Just want someone to tell me what’s going on because it’s just getting too much :(

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Mim-Bailey
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My_adventures profile image
My_adventures

HeyThis is awful I'm so sorry this is happening to you.

My pain started after my second child and I felt like I was being stabbed. It was literally like being stabbed in the stomach.

I think I always had heavier periods and a bit of pain, but after my second it was always far worse.

That happening to you after a meeting must have been awful.

I remember GP telling me once to just get on with it, when I said I'm in my early 30s I cant deal with this for 20 years until menopause and she said it's only once a month just deal with it...

You need to be referred to a gynecologist. it isn't ok to be suffering like this at all. Unfortunately you may need to be persistent with the GP.

Hope you get sorted, and take care xxx

Strongspirit7 profile image
Strongspirit7

I understand your situation that must be concerning about unpredictable blood loss especially in public. Poor you. Hopefully you might be referred to a gynecologist and a scan to get a better idea of the problem.

Damby profile image
Damby

I would highly recommend familiarising yourself with the NICE guidelines referral path and requesting that your GP follow that. It’s literally their job. If they refuse you should consider a)moving surgeries and b) making a complaint. Keeping a pain and symptom diary is extremely helpful to demonstrate the pattern of pain/blood loss. What you’re describing is what I had - ended up being adenomyoisis and endo, only diagnosed by a urologist when I had kidney stones. He happened to be the urologist who worked with the endo specialists and immediately referred me to gynae (they literally came to my bedside in hospital). It’s not normal, it shouldn’t be ignored and you deserve good care. I’m so, so sorry that you’re having to fight for it. Please message if you need any more support. X

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