You poor woman - what an awful situation to be in! I can sort of empathise.
I'm a lot older than you, but I do share some of the same symptoms. I have been diagnosed with Endo (in 2011), and have had 4 lap surgeries so far. MY symptoms started as a teenager - I always had pretty heavy and painful periods, which sometimes felt so bad I needed to go to bed. They were sometimes accompanied by migraines. I do remember being put on the contraceptive pill for a while in my teens to see if that would "regulate" my periods; but other than that, nothing really got done. The pill didn't really help all that much; I just found it caused bloating and spots! Mind you, that was in the 1980s!
I had a few years of pretty trouble-free periods in my 20s. Then, in 2002 (I was aged 31), the problems came back with a vengeance! Painful, heavy periods; bloating; water retention; nausea; dreadful pelvic and lower back pain; fatigue; upset stomach... I spent a number of years going backwards and forwards to my G.P. who didn't seem to know what it was. I didn't get referred to a Gynae until 2006!
In my case, the Gynae was useless - I guess I just got a really BAD one! He got loads of things mixed up and incorrect. HE thought I had polycystic ovaries (cysts had shown up on an ultrasound), but I never remember him doing any further tests. He was always absent from work, so I rarely saw him at appointments, which meant that I didn't get any proper treatment. Fortunately, I was lucky enough to see a junior Doctor in 2008, who referred me for a hysteroscopy with D&C. He felt that I had NONE of the usual symptoms of PCOS! Around the same time, I also had a colonoscopy (because I was still having bowel problems). The colonoscopy came back clear - showing my problems were on the OUTSIDE of my bowel (the surgeon wrote that he thought it was Endo). After the hysteroscopy I was told I did NOT have PCOS! I was then put on the Mirena device, to try to stop my periods - again this DID NOT work for me. I still had heavy and painful periods.
My G.P. was NO help. I was at a big practice with several doctors - and you never saw the same one! The WORST one there was called Dr. Pusey, and the sad thing was that she was female, and didn't seem to understand menstrual problems at all! She thought I had irritable bowel, then stress, then anxiety (which my useless Gynae also thought was the reason I was struggling to have children!), then a tummy upset... on and on with the WRONG diagnosis! She didn't even bother reading the letters from my other Hospital doctors that suggested I had Endo - NOR did my Gynae!
I demanded a second opinion in 2010. I saw a new Gynae who pretty much immediately said he thought it was Endo! I had my first lap in 2011, but the Hospital that did it failed to remove all my Endo. I then demanded referral to an Endo Specialist, and I've had 3 more laps.
My point is that Endo can be present, but get missed. Not all doctors are able to recognize it. Also you can have lots of Endo, and very little pain; or very little Endo, and lots of pain. It's not about the amount - it's about where it grows, and what sort of Endo it is. Endo can cause various symptoms, that some doctors confuse for other illnesses. For more on symptoms you could read
It may be a good idea for you to keep a diary of ALL your symptoms - when they occur, where in your body they are, what sort of pain, etc. This can be useful to take to appointments with you. You really need to get to know your body - and what is usual for you. Try to see if there are patterns to your symptoms. Also, try to keep a record of any treatments you try - and whether they work, or have any effect (including side effects). This way, you get to know what works for you.
You really could benefit from seeing a specialist, as many basic Gynae doctors do not have the skill or experience to correctly diagnose and treat Endo. Did you know that on average, it takes 7 years for a woman to get a correct diagnosis of Endo? In my case, it took 9 years from me first spotting what seemed like Endo symptoms (or over 28 years - if you count from when I first had painful/heavy periods!). The problem occurs because lots of doctors are not familiar with Endo, so they mistake it for other illnesses, or think it's just "normal period pain"! Specialists should be trained in recognizing and treating Endo. To find a specialist in your area, look up this website
You may have to pester your GP for a referral! It might help to take a diary of your symptoms wit you, to show how important it is to have a referral, because your symptoms are not well-managed. Also, if you feel nervous, take somebody with you for back-up and "moral support".
Read up on Endo, as that way, it makes it easier for you to argue your case. Endo does not usually show up on Ultrasound scans - so you COULD have it. Remember that, and tell your doctor. Also, Endo can come in different varieties. Women can have SUPERFICIAL ENDO that just grown on the surface. This is often easier to treat, and may be lasered away. However, some women can have DEEP INFILTRATING ENDO (which is what I have). This grows deep inside muscles and ligaments, and therefore can not easily be spotted, or lasered away. It usually requires more complex surgery and a more experienced surgeon to remove it. Deep Endo can be VERY painful, as it often grows in awkward areas, and causes nodules. For more on deep and superficial Endo, read
I'm REALLY SORRY that this is such a long reply, but I wanted to try to help as much as I could. I do hope that you are able to sort out some treatment that works for you. Endo, if you have it, is not something that can be permanently cured, but you can at least find ways of living with it. It's NOT all bad - as many of the women on this Forum can prove. plenty of women live successful lives with Endo - they have jobs, go studying, or have children. It' all about staying tough, knowing your rights - and fighting hard. Having Endo is not easy - it can be painful and tiring - and it's an illness you didn't ask for... but remember that if you are struggling this Forum is always here! You can talk to women with Endo on this Forum any time you like. We will all try to listen, and to help. DON'T GIVE UP!