work related help

[Mylovepari1]

I had my surgery in February 2022 and still in alot of pelvic pain ,can't even manage my daily routine activities properly have to take help from my child and the company where I am working wants me to do resign from work, I already lost one job before and I am not fit to do work as if I take painkillers I feel sleepy and I am living in my own world. as I can't control my urine and bladder need to rush sometimes quickly even going outside for appointments from my home is difficult for me sometimes I need to put pad, having bleeding from almost 6 months now my legs are bending can't walk normally for more then 10 mins.any suggestions. should I need to give resignation.

[Dee_EndoUK Moderator Endometriosis UK]

Hi Mylovepari1

Sorry to hear you're having a really tough time of it at the moment, especially if you are considering resigning from your job. To find out more about your rights as an employee we have a guide titled 'Endo: A guide to your rights at work' that can be downloaded from endometriosis-uk.org/resources. This link also contains personal stories from other endometriosis sufferers about how they have managed their condition at work, which hopefully will be of some help.

I'm also wondering if there are any non-drowsy pain relief options that could work for you? You might want to look at our 'Endometriosis Treatment Information Pack' for a comprehensive list of pain relief options you could try/consider. This can be downloaded from endometriosis-uk.org/endome...

I would also suggest you go back to your GP/gynaecologist to discuss the constant bleeding and the issues with your legs.

Wishing you all the best - I hope all the above information helps x

[Mylovepari1 in reply to Dee_EndoUK]

I was having my first follow up appointment after my surgery but it has been canceled and I was desperately waiting for this appointment as after surgery not even one day I stayed without pain and it is making me die everyday .Please help me as I am suffering, mentally and physically 😔 .

[Dee_EndoUK Moderator Endometriosis UK in reply to Mylovepari1]

So sorry to hear you're still in pain and that your first follow-up appointment after surgery has been cancelled. While you're waiting for the follow-up appointment to be rescheduled, please ring your GP or NHS direct on 111 as it really sounds like you need to see a medical professional as soon as possible to talk about how you're suffering. You shouldn't have to put up with constant pain.

We also have a free helpline (0808 808 2227), which is run by volunteers who have personal experience of endometriosis. The helpline is open most days and you'll always find warmth and understanding at the end of the line, so please do reach out - the times it is open can be found here: endometriosis-uk.org/helpline

You may also find our support groups useful as a place where you can discuss endometriosis and the issues you are facing with other sufferers. Please visit: endometriosis-uk.org/find-a... to see if there's one in your area. If not, we also have an online support group.

Look after yourself - take care x

[Mylovepari1 in reply to Dee_EndoUK]

hello. i had made a call on online group so many times on schedule time but I am not able to talk with anyone. Please help me understand as I am suffering and suffocating a lot.Pain,problems emptying bowels and urine make me feeling of fullness and vomiting. Mirena coil inserted in me,constipation so many things acid with painkillers I am only suffering. no painkillers is helping me if anyone see me in the evening u can imagine how bad my day was..Please is there any procedure to remove Mirena coil or should I remove myself. I just want to breathe properly which is all blocked with endo in my bowel, Mirena in vagina Oh God I can't even breathe. where can I go for help?

[MalachiteAli in reply to Mylovepari1]

Please contact NHS direct on 111 to get some help with your pain symptoms, vomitting and blobked bowels. You shouldn't have to suffer. I have a good pain management system in place though it still surprises me or breaks through sometimes but it has taken a while of adding meds and discussing my use of them fully with drs to get it right for me. You need to discuss your symptoms and pain management with your doctor, OOH Dr or get yourself to A & E if it's totally unmanageable. Try some deep breathing too, use an ap if necessary, if you feel that you can't breathe and are holding your breath or hyperventilating because if the pain, which I can totally understand, you will start to feel really anxious/panicky, which will make the pain more unmanageable. Deep breaths and get some help.

[MalachiteAli in reply to MalachiteAli]

Btw, I'm really sorry you are experiencing so much pain. And that you haven't had your follow up appt. That so shit, I got missed off twice too for follow ups and wasn't offered them. I felt so isolated with the pain. I complained and have my appt tomorrow now. Have you been offered another date for your follow up?