I have stage 4 deep infiltrating endometriosis and adenomyosis with multiple endometrioma and lesions in my bowel. All my intestines are stuck together and I have been told they my endometriosis is a spread to my kidney a little as well.
Since last night i am getting a dull pain below my rib and hurts really bad when I move. Has anyone gone through a similar thing or might have any advice. I am at work and it feels awful...
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Sham_R
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I'm so sorry you are suffering so much. I assume you are being treated in a specialist endo centre and with anything new like this you would be best to contact the consultants treating you. Are you awaiting excision?
Thank you replying Lindle. Yes, I am being seen my endo specialist, but it is impossible to get hold of the doctor. I had a ruptured cyst in Nov so they did and emergency surgery, now I am waiting for a proper excision.
Do you have the contact for the centre's specialist endo nurse? If not they are named on the BSGE list. It may be that you have endo affecting your ureter as this can go on to affect kidney function so keep on pressing or otherwise I would ask your GP.
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