After a very long and painful 6 nearly 7 years I’ve finally been referred to gynaecology. I am awaiting my appointment which is in a week but I’m extremely anxious that I’m not going to be listened to. I’ve been in agony, to the point I’ve nearly rang ambulances because I couldn’t move and previously had emergency surgery due to a ruptured cyst.
My GP did hormone tests which are all normal, I’m nervous that the consultant isn’t going to listen and that I’m going to continue to be in pain, even though I’m taking pain relief frequently. I have had irregular periods for years, and dealing with frequent pain that makes me want to vomit.
My GP is sure that it’s endometriosis, but I’m worried that the consultant isn’t going to hear me out.
Has anyone got any advice for the appointment? Can they diagnose me with any gynae issue there and then if that’s what it is? What should I expect?
Written by
CeeCeeB10
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The first very important thing is that the gynaecologist has a special interest in endo, which means having done additional training or having worked regularly with endo experts, so I would get the name (if you don't already have it) and google to see if a profile comes up confirming this.
I suggest you look at the ESHRE guideline to get a feel for what they should be asking and doing (link below). It gives symptoms that suggest endo but note that two important symptoms are missed, these being lower back and leg pain that are common.
They must do a very thorough clinical exam - this is the first very important step. This can identify immobility of the uterus due to adhesions, ovarian masses and deep endo in areas such as the uterosacral ligaments and pouch of Douglas (deep behind the uterus). This is done by a rectovaginal exam involving fingers up the vagina and bottom so be prepared for that. It might not be appropriate for virgins though. You should then have an expert scan. This is all called 'work up' to a diagnosis.
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