Frustrating with this all: It's all... - Endometriosis UK

Endometriosis UK

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Frustrating with this all

nikkimatt2019 profile image
5 Replies

It's all frustrating I hate this all no one understands when ur suffering through this it makes u feel like chit angry and frustrated dealing with pain all time having to put up with all this. Specially when u have bipolar and mental health problems your feeling so low and chit. Waiting games for op and next stage hate all this.

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nikkimatt2019 profile image
nikkimatt2019
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5 Replies
charlatan profile image
charlatan

Sorry to hear about what you're going through. You're not alone. Pretty much everyone on this website feels the same way you do. It is hard for others to understand what you're dealing with if they haven't experienced it themselves. I wish people could spend a couple of hours in my shoes and then they'd really get it. I've been waiting for my op for about 4 years. Covid really screwed me over.

nikkimatt2019 profile image
nikkimatt2019 in reply to charlatan

I'm sorry where u have had to wait I know how that feels mine has been going on for many many years its frustrating most times I suffer with really bad pain and no painkillers really work because in my past I took od to end my life. so my body used to tablets that's why wont work. The pain and people not understanding what your going through as well they should make this more aware and let everyone know we are here with this nasty thing

charlatan profile image
charlatan in reply to nikkimatt2019

God, I'm so sorry. Especially that you can't take painkillers. Don't know how I'd cope without my meds. They don't always work but take the edge of enough to make the side effects tolerable. I take some natural supplements too that might help - try turmeric for inflammation and CBD oil for the pain. Give it a shot, you never know. Always post if you're having trouble coping or feeling low. There's a lot of people here who really do understand.

nikkimatt2019 profile image
nikkimatt2019 in reply to charlatan

Thank u I get like that alot tbh and I dont really have anyone. I'm lucky to have my partner and 2 friends. But no one understands this that I'm going through or what's in my head. The pain I struggle dont get me wrong as having no painkillers because they dont work it gets hard as it's really bad strong pain u just cant get away from it.

charlatan profile image
charlatan

I know exactly what you mean. My partner is very understanding most of the time but he doesn't really get it. It's not his fault, he can't really know what people like us go through and he is supportive most of the time, it's just he has his own stuff going on and can't spend his whole life walking on eggshells around me. I know I can be difficult - being in pain doesn't exactly put me in the best mood. Have you tried amitriptyline? They work in a different way than regular painkillers. They don't just mask the pain, they change the way pain signals are received so that might be better for you. Assuming your GP is willing to give you them. GPs wind me up - they definitely don't get it.

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