I'm 1 day post op for the removal of 3 x endometriomas. 2 on my right ovary measuring 6x5cm & 13x8cm and 1 on my left ovary measuring 7x6cms. So pretty big and unbelievably painful!!
I had a great surgeon who managed to still get all of the cysts out via laparoscopic surgery however he did have to make 2 extra cuts at the bottom of my pelvis as both sides were fused together *kissingcysts* so he could get them out.
Just incase anyone's going through the same thing the surgery itself was not that bad. My operation was just over 2 hours and along with my cysts I've basically got endometriosis everywhere you can in there and I didn't even find out until 6 months ago!
The recovery was a few hours were they give you painkillers make you go the toilet and make you eat. I couldn't eat at all I threw up about 8 times but the nurse said everyone reacts differently to the anesthetic.
1 day post op and the most painful thing about it is the gas pain! I'm finding hot water bottles, ibruphen gel and peppermint tea is helping but i know they tell you to be prepared for this but hands down I've never felt anything like it!
I was terrified before this surgery and I didn't even know what endometriosis was 6 months ago! so if anyone is going through similar anxiety or having the op come up and have any questions I'll happily answer them xx
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Louberry12245
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Good luck on Friday 💕 you will be so relieved once it's done and buy some peppermint tea it's been helping me loads today. Please update once you've had it done and how you get on xx
Thank you so much for sharing your story and so sorry you’ve had to go through all of this and hope you have a speedy recovery ❤️
This is such a reassuring post as I am going through a similar thing. I have a cyst on my left ovary that has caused a lot of pain for me and was constantly pestering my doctors to be seen etc, but so pleased I didn’t give up as i had another scan and found that my cyst got bigger and is now caused kissing ovaries but luckily it looks like it’s just sitting next to my right ovary, but they want to do an MRI scan to see everything in more detail.
They are fast tracking me and currently on zodalex treatment for three months and should get my op soon 🙏. This has reassured me a lot as I am exactly like how you was really scared as I never had an op before ❤️
Ah I'm so glad it's helped you abit Honestly I was absolutely terrified I think more because I didn't know much about cysts or anything about endometriosis until they found them end of October on a scan then because of the size of them I was sent for a ct scan and then they realised the extent of how bad it was! I've had them for years growing the surgeon said and no idea how they all fit in there!! I waited for months for this op counting down every single day because the pain was that bad but I was so scared of the whole thing but now a day after my surgery even though I've spent it rolling around on the couch with a hot water bottle and plenty of painkillers it is 100% worth not having the cysts in there anymore squashing me because I know the pain I'm in now will heal and keeping them in would have only got worse! I told myself all it will take is one brave day and after that id feel so much better! plus I'm 4lbs lighter today than yesterday before my surgery!!xx
Hello Louberry12245 😊 wow, I am in awe of your story so far and your bravery! Truly inspiring. I'm so sorry you had such enormous cysts and were in so much pain, and I'm very glad to hear the surgery went well, it must be a relief and literally a weight off! Reading your experience, it makes me think how can I be worrying so much when I only have 1 endometrioma, increasing in size, but only 5.4cm. I thought this was quite big and have been really anxious about it! (by the way, why do they insist of giving these things 'cute' slang names like 'chocolate cysts' or 'kissing' so strange! lol) I'm waiting currently for an MRI scan and then deciding whether I need surgery or not. I think it's just the uncertainty and knowing there's something growing inside that shouldn't be there which is psychologically really disturbing. And the possibility of infertility. Crazy how all our suffering feels so invalidated just because of how common the condition is- it shouldn't mean we are so left in the dark or have to wait until things get so bad. Anyway, thank you for sharing and I hope very much that your endo stays at bay 🤞 sending love and solidarity to you and everyone suffering ❤️❤️❤️
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Honestly I was absolutely terrified I think more because I didn't know much about cysts or anything about endometriosis until they found them end of October on a scan then because of the size of them I was sent for a ct scan and then they realised the extent of how bad it was! I've had them for years growing the surgeon said and no idea how they all fit in there!! I waited for months for this op counting down every single day because the pain was that bad but I was so scared of the whole thing but now a day after my surgery even though I've spent it rolling around on the couch with a hot water bottle and plenty of painkillers it is 100% worth not having the cysts in there anymore squashing me because I know the pain I'm in now will heal and keeping them in would have only got worse! I told myself all it will take is one brave day and after that id feel so much better! plus I'm 4lbs lighter today than yesterday before my surgery!!xx
Anyone had the same experience or can give me some advice?
Please can somebody offer advice as I don't know what to do! :-( 
Terrified of surgery in few weeks to removed endo sticking my bowels to my cervix. So scared
Had my first laparoscopy yesterday! Still so confused!?
Can GP refer you to a BSGE centre EVEN THOUGH GYNE SAID NO
