Worried

[Snoopturtle1]

Hi I've got endometriosis and just found out I'm pregnant I've been on Google to see how it affects pregnancy but that didn't help with the worry. My question is has anyone had a successful pregnancy and no complications with being pregnant and endometriosis. I've done my midwife referral and waiting to speak to my doctor about it .

[Redhen17]

Hi, I have endo , pcos and adenomyosis . I didn’t get diagnosed till after having my son but this explained a lot . It took me many years to conceive and I’d had endo symptoms for a long time for getting pregnant. I am also over weight .

I did have a pregnancy and birth with no issues .

I had some extra scans during my pregnancy and these were all fine and a quiet reassuring . I was pretty anxious during my pregnancy too. I found pregnancy yoga helped and also met other expectant mums .

Try not to Google too much as u will tend to focus on the worst bad things if ur anxious .

It can be an anxious time being pregnant , speak to the midwife and take care of yourself .

Best wishes

[Snoopturtle1 in reply to Redhen17]

Hi it's not being pregnant that worrys me as this will be my 9th it's having endo with it as when I first got diagnosed with it I done as much research as I can and then finding out I'm pregnant I tried finding out if there were any risks and everything I had read was negative but finding out that other people have had successfully pregnancy and any experience with it. Is more positive then google as it's real people not people in a lap doing tests

[mollymm in reply to Snoopturtle1]

Hi there. Huge congratulations.!! I really hope this puts your mind at rest. I had two healthy pregnancies with endo. No complications at all. I had 3 ectopics. Two before my first baby and one in between. The first 2 ectopics miscarried naturally at about 6 weeks but the last didn’t and unbelievably the hospital wouldn’t believe that it was ectopic till it ruptured at 12 weeks. Far too late. That said, I knew that it was ectopic at 6 weeks as did my GP so it was clear there was a problem really early on even though the hospital wouldn’t act. When I had my youngest they did HCG checks immediately I discovered I was pregnant with a 48 hour interval as that tells them if it’s ectopic (basically your HCG level goes up each day with an ectopic pregnancy but only by a small amount rather than doubling each day as it does with a healthy pregnancy). Obviously all was fine and he’s now 13. I have other friends with endo (some of them like me with other nasty conditions as well as endo) and they’ve all had healthy pregnancies. For most of them the problem was conceiving in the first place but then it was plain sailing. Sadly I have a couple of friends with endo who have been unable to conceive as a result, which breaks my heart. I wasn’t aware that there were risks involved once you were pregnant to be honest until reading your post apart from an increased risk of ectopic pregnancy which would show itself at around 6 weeks or before. My endo became much worse 2 or 3 years after having my youngest by c section but whether was related to the c section or just natural progression, no one really knows. FYI I have stage 4 endo. I would try not to worry about it. We have so much crap to put up with with endo as it is. I’d try and enjoy this bit and hopefully an endo pain free 9 months and a beautiful baby ♥️

[Snoopturtle1 in reply to mollymm]

Thank you so much Ur reply has helped relax my mind a bit. It's so confusing when reading what professionals say online but hearing your story helps I've had 2 miscarriages and in hospital 3/4 times due to cysts bursting. I ended up back up hospital in 2019 thinking another on had burst and turned out I was pregnant with my lil boy 3 months after I had him I was diagnosed with endo. This time I only done a test because I was 4 days late where as it normal for me to be 2 days late. It come as a shock I'm happy about it don't get me wrong but it's just worrying about it and what affects could happen.

[YummyBear]

Yes, acute Endometriosis, one ovary, one fallopian tube, 3 healthy babies, very lucky!

[Snoopturtle1 in reply to YummyBear]

That's good 👍maybe I'm worrying over nothing then x

[YummyBear]

I was told that the longer you are pregnant, plus breastfeeding it enables the hormones to stop working and therefore the Endo isnt active. After baby No. 3, I had a 6- month course of medication to stop periods altogether, by which time I was in my early 40s and the Endo completely ceased, no pain from there on in (glad to see the end of it after suffering for 30 years!Do lots of research yourself; specialists/+GPs dont always have time to tell you everything. All the very best with your pregnancy.

[Snoopturtle1 in reply to YummyBear]

Thank you so much this has really helped me. I spoke to my doctor about my pain relief as I'm on morphine patches and liquid morphine and he says it's ok up till near the end as there's a risk Baba would have breathing problems I'm also on waiting list for op to get the same as u have had done but I will do as much research as I can when my 20 month old asleep

[Jenn2022 in reply to YummyBear]

Yes - breast feed for as long as you can, studies have shown it really can make a difference to endo

[Snoopturtle1 in reply to Jenn2022]

Thank you I will try this time as couldn't with my 20 month old as every feed he had he was really poorly. Turned out he has cmpa. I'm hoping this one will be ok and not have the same allergy

[Tillyfloss]

Hi. Congratulations 😊. I have had two mostly healthy pregnancies and my stage 4 endo didn’t cause problems at all ( it was the getting pregnant that was the difficult but). They didn’t seem to worried about the endometriosis, they were more cautious over the potential complications that the scarring from all my surgeries might have had during labour but I had placenta preva and a breech baby ( neither related to endo) so they opted for a planned c-section on medical grounds which was very calm and well planned. I hope you have a healthy pregnancy and if you have any questions feel free to ask. Xx

[Snoopturtle1]

Thank you so much. Did you have extra check ups or scans. I know I'm gonna be high risk due to my age and this being nu 9 but did endo make any more of a risk

[YummyBear]

I went to add some more details but it flew away to the dark unknown! I will write another time. Glad to see you are getting positive support here.

[Snoopturtle1 in reply to YummyBear]

Ok thank you x

[Chicken2012]

I got diagnosed after the birth of my 2 children. I have stage 4 Endo. It took a while to conceive and was told it was because I was stressed. I was concerned at the time due to pain periods getting heavier. Book yourself in with a midwife ASAP and try not to read too much on line. Congratulations on your pregnancy.

[Snoopturtle1 in reply to Chicken2012]

I've booked in with midwife the day I found out still waiting for one to contact me

[Chicken2012 in reply to Snoopturtle1]

I hope you get the support you need . X