hello when you say endo belly? do you mea... - Endometriosis UK

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hello when you say endo belly? do you mean like a feeleing of bloatness feels as if you are pregnant but you arent?ThanksMelissa

Meljayne profile image
9 Replies

hello when you say endo belly? do you mean like a feeleing of bloatness feels as if you are pregnant but you arent?

Thanks

Melissa

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Meljayne
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9 Replies
Escapologygirl profile image
Escapologygirl

Yes that is exactly what it is and just flares up anytime and is extremely uncomfortable and clothes feel too tight

Meljayne profile image
Meljayne in reply to Escapologygirl

Thankyou I’ve been having this too amongst other symptoms for a while waiting on laparoscopy but it is really affecting my quality. Life now

Escapologygirl profile image
Escapologygirl in reply to Meljayne

It really does, its a whole life problem and the amount of times I've been dismissed by nurse's and people is just depressing

Meljayne profile image
Meljayne

I am hoping I get more treatment soon I’ve always suffered badly but not like this

Meljayne profile image
Meljayne

How do you find your moods are ?

Joolay33 profile image
Joolay33

Yep! Before my first operation. I'd be a size 8 in the morning and 12/14 during flare ups. It was awful and stopped me going out. Not because 12/14 is in anyway a bad size to be. But I couldn't fit on my clothes and It was painful and uncomfortable. After my first lap this improved greatly. I would also get congratulated on pregnancy or asked "are you sure you're not pregnant". That hurt alot and became very frustrating. X

Meljayne profile image
Meljayne in reply to Joolay33

Sounds very frustrating. Yes I have noticed my bloating and my weight fluctuates. The medication I’m on is helping. I have had regular physio since the birth of my daughter for all kinds of reason of pain knee, shoulder, lower back and upper limbs too and I am Wondering now if it’s all connected. The moods and fatigue I get with it is awful

Joolay33 profile image
Joolay33

I think it probably will be connected. My hips, back, shoulders are all a mess. Apparently it's the stress of your body compensating for the flare ups and pain. The mood swings and fatigue awful here too. Best thing I did was learn to stop feeling guilty about it and take a break when j need to. It's just difficult when some drs, dismiss it as period pain.

Meljayne profile image
Meljayne in reply to Joolay33

Yes I’m thinking that joe to I see the physiotherapist again Thursday for a neck related injury but u have requested all of my physio notes and I am thinking all of it is connected I have just given up working full time as I have always had a full time job and starting some care work with an agency as I have learnt sometimes I am just having to sleep around that time of the month now

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