Need advice as at wits end…🙁 endometrios... - Endometriosis UK

Endometriosis UK

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Need advice as at wits end…🙁 endometriosis back pain

28Granville profile image
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Please help… I have looked 5 months pregnant since I had my son 7 yes ago. He was c secretion, at birth I had sterilisation due to a hernia, then just 12 weeks later, op to remove umbilical hernia. My ‘bloat’ is constant no matter what I change in diet, exercise or weight I am. Last year, diagnosed with endo, & ‘ bulky womb’ put on decapeptyl, now put on mini pill & norestherone to stop the flooding every other period. Last few weeks… horrendous lower back pain… no follow up or answers…. 😞

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28Granville profile image
28Granville
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Angel1i profile image
Angel1i

Hello.. you need to insist on getting some basic tests done especially if you are bleeding abnormally. See a different GP, or insist that you get investigations done as your symptoms are getting worse. Noresthisterone can cloak the symptom of bleeding and allow anything more serious to be hidden. I know this from experience. You should be having a CA125 test and a PV ultrasound at the very least being carried out.

28Granville profile image
28Granville in reply to Angel1i

Than you so much for your reply. I’ve been put on these tabs because the flooding I sometimes get actually prevent me from going to work…the mini pill desogesrel I’ve been on for just over a month but there’s days where I’m feeling so low on it, just can’t seem to shake it off. I actually went for a private yesterday with Bluecrest, funnily enough they did do the ca125, and also looked at having a stool sample and urine too. They’ve done liver & kidney so will be intro to see what it shows… the bloating has been like this for 7 years since c sec, sterilisation and hernia op. All tests since have said it’s ‘gas’… funny how I never had it before though!

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