Regarding endometriosis flare ups.

[BetterFlyAway]

I was diagnosed with endometriosis 2 years ago and had surgery last year to remove the cysts from my left ovary. Unfortunately the cysts have returned.

For the past two months I have been experiencing episodes where I have flare ups. I experience serve pains in my upper rib cage, (pulling painful sensations) difficulty breathing, tingling in my fingers, dizziness and fatigue. This went on for about half an hour I believe. I used a hot water bottle during this time, it took a while for my breathing to calm down and return back to normal.

Has anyone ever experience this? And How can I avoid these painful flare ups? Also they seem to happen during dinner times.

I plan to speak to my GP and gynecologist regarding these episodes early next year but just wanted some help and advice in the meantime.

Thanks!

[SoJo_EndoUK Moderator]

I’m so sorry to hear you are having such a hard time, the pain can be so debilitating at times, can’t it? I have experienced these symptoms and I understand how difficult they are. Whilst endo is primarily found in the reproductive system it can travel to other sites in the body. Might I suggest keeping a pain and symptoms diary? Endo UK have a great template (link below), I know a lot of endo sufferers have used this as a tool to present their symptoms to their doctor/specialist. This can help the health professionals understand what you are going though and identify any potentially patterns to your symptoms. Keeping a food diary might also be useful, a lot of individuals with endo have comorbid food intolerances, gluten and dairy intolerances are the most common ones I have observed. Hot water bottles are a great idea, there are wearable hot water bottles too which are great, they tie around your waist. I know it’s difficult to take time out sometimes but often our bodies really thank us for some rest. I don’t know your situation regarding treatment, but it might also be helpful to explore the treatment options available (link below) so you are fully informed. I hope you feel better soon and we are here for support whenever you need it.

endometriosis-uk.org/sites/...

endometriosis-uk.org/sites/...

[Abigail3]

Seems you are really going through it. I am sorry for you. I can however help with some of the problem. When you get pins and needles along with breathing problems 99/100 times it’s because of a panic attack it looks like you were in pain your breathing quickened which leads to too much co2 this causes tingling in hands pins and needles dizziness so many people here panic attack and think it’s nothing but it can feel like you are having a heart attack. Well done for getting past it and next time try and remember it will pass and concentrate on breathing slow it down as quickly as possible all of the above means that you body has been through a massive ordeal which will leave you fatigued and totally shattered. Years ago I started having panic attacks with pain and had everything you had it’s took me a while but now I don’t get upset about the pain I try to deal with the pain luckily I am having a hysterectomy by keyhole 2nd week of Jan so I see a light at the end of a 14 yrs tunnel. Now you know what it is you might be able to cope a bit better and they will lessen. Hope you get answers. Hugs xxx