In a lot of pain and fed up. Just ranting. - Endometriosis UK

Endometriosis UK

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In a lot of pain and fed up. Just ranting.

6 Replies

I was fine for all of lockdown and moving house but since August when I had a meal in a pub and had horrible diarrhea. The next day I ended up in hospital with a lot of pain and suspected gallstones turned out to be a kidney infection as a result I got a ton of antibiotics but ever since then I've still got pain and gut symptoms and i am sick of it. It's really affecting me. Everyone is saying I should get on with it which I do try to but I just feel absolutely annoyed with it.

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6 Replies
Moon_maiden profile image
Moon_maiden

Try to ignore others that won’t be able to understand how you feel.What are you taking for pain? Are you waiting for op?

After two years with pain, at A&E the other week I had intravenous morphine and Diclofenac supp, the Diclofenac I think has worked better than anything.

Probiotics are always good to take after antibiotics just to replace what the antibiotics have taken away in the gut. May help settle some of your symptoms

Hope you feel better soon 🙂

in reply to Moon_maiden

Waiting for internal scan at the moment and a look for suspicious cells. Are there any probiotics you recommend? Dr think I have a stomach ulcer as well given me two months of tablets and if they don't work want to arrange an endoscope. The gut symptoms are depressing me more than the pain. Also I'm going the drs too much according to my mum I just want it solved.

Moon_maiden profile image
Moon_maiden in reply to

I spent 2019 constantly going/contacting GP not getting anywhere for best part. Probably still am really 😂

You’re doing really well getting this far, they are there to help us and we pay/paid, it’s not free. I’m sorry your mum doesn’t understand. Did your mum suffer with bad periods? It can sometimes be hereditary. I think my mum had it and I know my paternal aunt had it. I was diagnosed very late, but always suffered.

My GP likely hates me but I don’t care about pushing anymore.

Go for a good make, at least just an initial pack. We can’t mention names, but something in the several billions, or even a really good live yogurt. I empty a capsule in a yogurt everyday for maintenance as much as anything.Try not to let the medical profession label as depressed, the pain and uncertainty is a natural cause for being cheesed off. Unless there is a proper diagnosis of depression, but hormones play a part in both. If you have questions, you need answers 🙂

I hope you don’t have to wait long for your scan 🤞 and doesn’t confirm suspicious cells. Keep us posted.

Oh my previous drs diagnosed me with anxiety in 2019 and I was not happy as I was in a lot of pain turned out I had a fused and twisted ovary and a fibroid pressing on my bladder they also discovered the endo then. My mum had it but she didn't realize until she had her hysterectomy when her womb was fused to her bowel but she is now telling me she just got on with it. The only reason I've got this far is because of my mum's history it sets of alarm bells because of the Braca gene and how many times she's been sick in the past.

L0rlah profile image
L0rlah

I'm so sorry you are having such a tough time. I had awful stomach issues earlier in the year. For me personally a dairy free diet had changed my gut in the best way and I take some probiotics which also have female hormonal support they are tablets in a yellow box from a well known pharmacy that sounds like toots. They have been amazing. I started off with the blue box ones they agree 50 billion CPU then when my stomach got better I dropped to 25 billion and now on 17 billion. Hope this helps x

What is the internal scan like? I always find the smear tests really uncomfortable and with some pain. I am absolutely fed up with everything.

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