What is this pain... Fed up!!: I had a... - Endometriosis UK

Endometriosis UK
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What is this pain... Fed up!!

Jodiex
Jodiex

I had a laparoscopy in May and was told I've got endometriosis... This explains my ongoing battle with pelvic, back and leg pain. It was performed by an Endometriosis specialist (gyne). I am still having pain and my GP has told me its around the area my bowel/intestine is... I've tried anti-spasmodic meds which don't do much to help!

What I want to know is... Will the specialist have looked at ALL organs or only the gyne ones when she did my lap?

I'm fed up of not knowing what's going on in my body and why I'm in pain every day :(

6 Replies
oldestnewest

If you've had a diagnosis what is the plan of action to make you better ! Why aren't you having it removed ???? Once that is achieved you then need to manage your periods with possibly hormone therapy etc

Jodiex
Jodiex
in reply to Kfern

I have the mirena fitted already and I have tramadol for the pain. They offered me zoladex but I was advised not to have it if I want a family in the next 2 years (I'm 25 with no children).

Kfern
Kfern
in reply to Jodiex

I would try the qlaira pill instead but you should have it removed even if you want children 😀

Jodiex
Jodiex
in reply to Kfern

I should have what removed? The mirena?

With my diagnostic laparoscopy they looked at everything they could reach without making a large incision. So bowel, liver, kidneys etc. Most like they did the same for you, post op I tried a series of contraceptive pills (they said this would prevent it from returning so aggressively) this was unsuccessful as I had a 4 and half month bleed and the pain was worse than it was before.

I now take nothing, and my cycle is regular. Diet is crucial ! I suffer with endo on the bowel so suffer in that area too 😳 I suggest at least 2 litres of water a day to ensure hydrated muscles and minimise fatigue in your legs. I mainly use the anti candida diet, it's not a weight loss thing it's purely to minimise any fungus/yeast build up that effects hormonal conditions such as endo !

I really hope this helps .. Sorry it's a long reply !

Take care

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