I have recently joined this website and it is breaking my heart to read the endless posts of women who are in agonising pain, unable to work, sometimes even unable to stand up with the pain they are in. Are you depressed, losing heart or feel unable to cope due to your endo ?
Worst of all is that many of these woman have had repeated surgeries which have not helped and sometimes even made their condition worse. Enough is enough we need regulation of the doctors in this field,especially in private practice. Their success rates must be recorded and monitored to see who is doing a good job and who isn't.
We also need much more research to see which treatments work and which don't.Several "star doctors" have special procedures they say make their interventions more effective. For example using die to highlight all the endo before they cut it out, using special substances other doctors don't use to reduce risk of adhesions, using a "second look " procudure to reduce adhesions, using a special rolling technique to tackle bowel endometriosis, using robotic surgery to visualise more endo and carry out operations more quickly.
But we have no actual proof from studies of the efficacy of these procedures. In addition many surgeons patent their new developments so that others cannot use them. We should be assessing their effectivness in studies and fidning out which steps improve success rates and outcomes. I thought median was meant to be sciene based. If someone has a procedure which results in better outcomes it should be being adopted as best practice and shared.
The oonly way I think we can achieve this is if we put pressure on our politicians. I know you may have poor opinions of them, but it is worth a try. If we all write to our MPs and bomabard them with pressure to demnad better endo treatment and more endo research it will happen. 1 in 10 women have this illness.......some researchers suggest it's actually more like 3 in 10. Why should we suffer with dismissive doctors, lack of research and no monitoring of surgeons success rates which means any medical interventions are a gamble.
So please don't just stay home and feel sad, venting on social media. Contact your MP make this a political issue. Write them a letter telling them how you are suffering and push the government to do something to help us all.
Why do they NOT remove all endo in one lap?
Does anyone know the percentage of women that have recurring adhesions that grow back after laser surgery to remove them first time?
Ultrasounds/MRIs - My experience and why you need to advocate for yourself if they don’t show Endo!
Urgent- can anyone please help? Surgeon advice
