The three types of endometriosis

[happyseal]

I'm not sure if it is ok to share a link, but this article came out today and is really good. I thought it'd be useful for you ladies to know as well.

theguardian.com/australia-n...

[BooWho]

Wow - thank-you so much for sharing this article!

Finally recognition that endo effects the nerves and leads to neuropathic pain. And depending on the branch of the nerves this leads to other problems with surrounding organs. I can’t tell you how timely this is as today after years of pain I went and saw a pain specialist who told me the same thing!

I’m now on treatment to try and desensitise my nerves (hypogastric nerve that’s connected to the uterus, bladder and bowel). I am also on meds to relax my glut muscles as these have greatly been effected and are always painful.

The body is a whole system and it’s about time it was recognised as such rather than specialists only seeing it through their single lens of expertise.

Again thanks for sharing!

[happyseal in reply to BooWho]

That was perfect timing 🙂 awesome.Are having your treatment with a pain specialist from an endo centre? I haven't seen one yet and like you my bladder and bowels are always troubling me.

[BooWho in reply to happyseal]

I wasn’t taken seriously by my gyn specialist, started saying the pain was because of my ‘depression’ since he removed all the endo. I told him that’s not so, when I don’t have pain I don’t feel down, it’s the pain that brings me down.

So I ended up researching and finding my own place. I’m based in Australia, Melbourne and saw a pain specialist who specialises in rehabilitation, post surgery pain - The Pain Clinic in Richmond. She actually asked me about my bladder and bowel and then went on to explain how it’s all connected through the nerves. She also said to avoid surgery if possible as it can create more problems, similar to the article.

Where are you based?

Hypogastric nerve

[happyseal in reply to BooWho]

It's good that the theory is catching up but is sad that even the Endo specialist didn't entertain the possibility. It's good that you found someone. I have been avoiding surgery for a while but after my first and last surgery things did get worse as you say and as is explained in the article.

So how did you manage to find the pain specialist specialised in rehabilitation. That must've been hard to find the person.

[BooWho]

I should add I have no medical background, would be great to hear from anyone that has what their thoughts are.

[BooWho]

I just googled ‘pain specialists’ and the clinic she works at came up. Got a referral to go see her from my GP.

I don’t think it’s the complete answer but I’m hoping the pain will minimise and possibly avoid further surgery.

Might be worth a chat with your GP?

[happyseal in reply to BooWho]

Minimising pain and having less surgery is definitely a big help.

[USgalwthendo]

Thanks for posting. I just posted too before I saw your post. My husband shared with me and I felt so validated they are researching more. I had surgery 8 years ago but remained in pain -this may be why

[happyseal in reply to USgalwthendo]

It's true it finally feels that they can understand our complaints.