We hold monthly webinars hosted by health professionals who specialise in endometriosis. In these webinars they discuss a range of endometriosis topics and also answer questions from the public.
We want to hear from you. Which endometriosis topics would like to hear about in our future webinars? Please can you share your answers below? We will be using your suggestions to create more webinars that meet your needs.
You can see topics we have already covered and what we have coming up here:
What treatment options are there for those who can’t tolerate hormones?
What treatment is there for the other symptoms of endometriosis apart from the pain which so far is the focus ( bloating, nausea, fatigue, etc)
Endometriosis and peri menopause
What training is given to gps on endometriosis especially investigating it as a possible condition based on presenting symptoms? What’s being done on the ground floor to get the doctors to listen to women and take some seriously when they present symptoms of endometriosis?
That’s a couple of ideas based on own experiences. Hope it helps
Why do some women have an immediate failed laparoscopy where endometriosis was removed by excision and by an endometriosis specialist? An no benefit at all even short lived is experienced and pain even seems to be worse then before?
What other options other than hormone contraceptives can be offered to control symptoms?
Coil fitting experiences and why no pain relief is offered to women? For me it has been the most painful experience and the pain even shot down to my legs.
World wide many children and adolescence girls affected endometriosis. Girls lost their school and childhood days. We want need temporary solution for girl children to complete their study.
How can the goverment justify these waiting times, and lack of funding into womens health??? Why are women waiting and waiting in pain suffering for so many years? By which point some have then fertility isssues, other issues with other organs. Massive impact on mental health its not just habing a painful period! Its been going on for years and years and they cant blame long waiting times on pandemic as it was bad before any of this.
I agree there using that as excuses this has been going on way before convid specially with me many years way before convid and us women are suffering serve pain and waiting for what? For are bodys to be more damaged and for it to be to late? That's what they are making us do.
Hi there, we now have two webinars that could give you more information on this area. Endometriosis and the Menopause on Monday 4th Oct bit.ly/3lMQsZc and Medical Management on Wednesday 3rd Nov bit.ly/3ClqfHP I hope these can be of use.
I am being tested for coeliac disease (already have endo that I am awaiting treatment for) and have read that it's often associated with endo. I seem to be having more and more bowel issues recently. I have been recommended to reduce gluten and have noticed that I seem to get more symptoms after eating bread even though it's homemade. I already eat veggie/vegan mostly, soya free (due to partners dietary needs) and it's a lot to consider going gluten free too. It would be good to hear more about diet for endo.
Stress and endometriosis - is there a link? Is any research being done on this? I have had some reasonable adjustments applied at work but if stress is a trigger then I may need to think more about this. If this was established then it would help people to speak with HR/OH about what reasonable adjustments they need.
The truth about total laproscopic hysterectomy +/- unilateral / bilateral oophorectomy. How can one get a second opinion if anxious / scared about having surgery? What if one refuses to have surgery, are there other treatments options that can be offered?
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I want to know more about kissing ovaries and endometriosis 
Do you have any top tips for preparing and recovering from endometriosis surgery that you would be able to share?
**Can everyone PLEASE sign & share PETITION to David Cameron, Endometriosis needs faster diagnosis & greater education amongst medics**
A new piece of research into how endo responds to N-Acetyl Cysteine...which you can buy in Holland & Barrett!!
