side effects from prostap: Could anyone... - Endometriosis UK

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side effects from prostap

MishC profile image
9 Replies

Could anyone tell me when you felt the side effects from prostap kick in hot flushes, insomnia, mood swings etc)

TIA

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MishC profile image
MishC
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9 Replies
LEH199 profile image
LEH199

All of the above, felt very depressed to begin with, and surprisingly a lot of pain! I had my first injection the morning I’d started my cycle so maybe it was down to that but really awful pelvic/ abdominal pain (like a bad flare up!) as well as the rest of the body aching, headaches, nausea but without vomiting, spots!!! The list goes on...

I’m only 2 weeks in but honestly if it continues like this I wish I’d declined because apart from not bleeding my symptoms are the same, if not worse.

I’m not sure if my age makes a difference I’m 25 so nowhere close to menopausal.

Hate to sound so negative but would prefer to show someone the honesty I wish I’d had...

Please feel free to message me if you’d like to talk/ have any questions. X

Pacman12 profile image
Pacman12

Hi there, for me I got a flare up in my normal symptoms (pain, bleeding) about 10 days in that lasted a couple of weeks. I started getting menopausal type symptoms (brain fog, insomnia, hot flushes) about 3 weeks in, I started taking hrt about 4 weeks in which helped quite rapidly (over 3-4 days?) and I felt great for a couple of months. Had a lot of bleeding/pain in months 4 and 5 which was unexpected - consultant said I was unlucky, personally even with the benefit of hindsight I’d still have the treatment though - the good two months gave me a real glimpse of what life can be like. Hope that helps 😊 x

MishC profile image
MishC

I had my first injection 12 days ago and so far i've had no real side effects which i thought was a little strange. I wondered if there was a delay in the side effects kicking in (a month/6 weeks) but that doesn't seem to be the case. I've done IVF in the past and i remembered with that i got hot flushes which stayed with me forever and i also couldn't sleep but i wasn't tired and it didnt effect my mood. I cant remember at what time stage the side effects started but i'm hoping this time i get off lightly as i'm suppose to be on prostap indefinitely.

Tillyfloss profile image
Tillyfloss

Hi. For me prostap was brilliant, I did get hot flushes but it virtually stopped my pain unless I ate something that triggered a flare up. Are you having the monthly injection or the 3 month one? Xx

MishC profile image
MishC in reply to Tillyfloss

I've had a 1 month injection 2 weeks ago and have just got another 3 1 month injections. I'm a bit unsure about taking the 3 month one at the moment but if these go ok i'll give the 3 month one ago. How long have you been on it for?

Tillyfloss profile image
Tillyfloss in reply to MishC

Hi. I was on it for 6 months without hrt, it was to allow healing before ivf. Xx

RW954 profile image
RW954 in reply to Tillyfloss

Hi I just wondered what types of foods do you think cause flair up’s? X

Tillyfloss profile image
Tillyfloss in reply to RW954

Hi. For me I can’t eat - red meat

- any pasta ( tried gluten free but still get a flare up).

- try to avoid bought cakes, usually just cause uncomfortable tummy not full flare up).

- pastry

- breads with seeds in.

- bought pizza but during the lockdowns we had a go at making our own and I don’t get any problems with the home made ones.

I very strictly followed the endo diet and after surgery I slowly tried things again to see if I had pain, it was a long process but worth it. Xx

MishC profile image
MishC

Well again I'm in the minority!

Even though i have endometriosis which i had it removed in 2013 i didn't actually know i had it. Apparently it was stage 4 which i realise is the worst kind so i'm very thankful i didn't suffer.

I have never made any changes to my diet.

I've been put on prostap because i bleed very heavily and get severely anemic. I have to go to hospital for iron infusions but unfortunately for me i'm allergic to iron so i have t have a steroids/antihistamines IV-ed into me at the same time. We are hoping that by stopping the bleeding it will reduce the number of iron infusions i need.

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