Endometriosis

[Nm1993]

I'm really overwhelmed at the moment, I've had period issues for a few years now, since I had my youngest son in 2017. They've always been heavy and painful. But nothing I'd consider abnormal, pain wise.

The spotting started in early 2018, upon getting a pap smear, it was discovered I had cervical ectropion. As the bleeding has progressively gotten heavier, and heavier. To the point, I was bleeding for a week prior to my period, then a week during my period. I returned to the doctor, as the symptoms of my period was changing. I was getting a heavy pelvis, gurgling within my pelvis and my bowel patterns were changing. I was referred to a gynecologist, she performed an internal scan in May 2020, she didn't see anything and said everything looked clear. She also done a silver nitrate treatment. Which, honestly, made no difference. The bleeding has continued, albeit gotten slightly aggravated. I returned to the Doctor, she checked and said the ectropion, while red. Should cause the bleeding and she was dismissive of my concerns. So, I have made myself heard, and told her that this is unacceptable and I need to have an answer for this, it isn't normal. I've had my bloods done, other than a slightly low thyroid (which she believes isn't anything to be concerned about as it's within a normal range) so she's putting my through to have my thyroid checked again, and for a CA125 test, for ovarian, abnormalities. As I'm sure you can imagine, was a bit of a shock. Surely this couldn't be ovarian cancer, I had an internal scan in May. The gynecologist said my ovaries and womb where all clear. Just a shell of panic now, and I have no one to talk to. My partner, as understanding as he is. Just says "awk but the doctor says it's fine, it's just your normal" but this isn't my normal and I'm just frightened

[Jellybean20]

Hi, I have seen that you haven’t had a reply and wanted to reach out. I no exactly how your feeling with all this as it’s the fear of the unknown. I had the ca125 which came back raised, when I got that call to tell me that I hit the floor! I was devastated then a scan found I do have a cyst on my ovary which I’m due to have resized next month. So I’m thinking I have high ca125 indicating potential ovarian cancer and an actual cyst on the ovary and then I’m told I have endometriosis?! It’s like what!!! The mental drain of it all is just exhausting and it’s hard when people don’t understand. The pain the tiredness it’s all just horrible. I’m lucky though as my gp is very on the ball with me as I had a cin 3 smear less that 2 years ago and then ended up with a new growth on my cervix plus this new endo diagnosis and ovarian cyst so I’m being very well looked after I’m just waiting to meet my endo consultant and see what the next plan is with me! Personally I just want it all removing as I can’t keep living in this fear! My advice to you is keep on to the gp’s report all changes to anything!! I let a lot of things medically and I always had an excuse for the pain or the change and in hindsight I was very wrong! I phoned my doctors recently to talk about my legs actually going numb and swelling and I said to her “but it’s obviously because of my endo” and she’s like no it’s absolutely not so another 4 bottles of blood taken today to try and see why my legs are giving up on me!! Listen to your body, moan and cry and do whatever you need to deal with it then pick yourself up and make the doctors listen and give you the answers you need and the help that you need. I’m really not sure if this helps but I hope it does 🤣

[Nm1993 in reply to Jellybean20]

Thankyou for the reply, it's just so tiring. I'm farely confident it could be endometriosis. The constant abdominal ache, and the amount I'm bleeding just isn't normal alongside other random aches and pains that all seem to happen around the 2 weeks of my period. Just exhausted of constantly asking to be referred and looked at. Shouldn't be this difficult 😩

[Jellybean20 in reply to Nm1993]

I found I was spotting a good ten day before my period came but my period was never really heavy but a lot of back and pelvic pain but I put all this down to having the lletz procedure and maybe just changing my periods somehow?! Luckily my doctor didn’t agree and referred for the ultra sound and colposcopy. I really do feel horrible atm! I definitely feel my hormones are not right. Just wish it was treated more efficiently considering how much impact it has on people daily! Just feel left to get on with it.

[Nm1993 in reply to Jellybean20]

I hope you get to the bottom of it all soon, that's exactly how I feel. For something, that's always portrayed as an urgent situation. I feel like they're not overly interested too. It's definitely crap

[Jellybean20 in reply to Nm1993]

It really is! Hoping you get some answers or help very soon! X