I have been having lots of bladder issues. It feels swollen and can go up to 35 times in the day. Sometimes I struggle to go and get urges, but the bladder feels swollen to feeli g stiff. It does feel like somethings in it.
I'm take solifencin 10mg, but struggling with relief.
Not get far with doctors, should I go to a walking centre?
Could be uti, best to get checked out just in case.Where are you with endo at the moment?
I was under urology and put on solifencin, which is the maximum dose.
It doesn't feel like uti. I had that before. They sent a sample for testing, but it took me 3 months to be heard.I've waited and still waiting a year, since my diagnosis to get an appointment with a endo specialist, but been told some specialist are not taking new patients.
My CA125 count has double. I've been re-referred to urology and gastroenterology, but on a triage waiting list. My gynae is useless, regardless of the constant ringing by myself and my GP, has not got in contact with me.
The pain has increased, and no help in sight.
Sorry this is turning into a rant.
I loss my last job due to redundancy, which they stated was because of being unable to carry out my job, to the best. My new job the manager is understanding, but only been there 3 months and I'm already asking them to reduce my hours. A lady that started the job, same time as me, who also has endo, got an appointment with a specialist within weeks!
I'm at the end of my tether, just sick of no one listening.....I need help!
I do feel very low, that I'm sick and tired of fighting now.
I am so sorry about the rant
Don’t worry about what you’ve put, most, including me, can relate 🙂
GP is being ridiculous about a referral. Gynaes, as a lot of consultants are busy, stupid thing to tell you. Is there a particular consultant you’d prefer to see. Your absolutely entitled to a referral and now.
Would it be worth moving surgeries or seeing a different GP. I have found that when I’ve spoken to the GP I’m registered with things happen, but I whinge big time. Tell, politely, not the way I’ve done it 😂, them you want a referral rather than ask. If you use the online econsult for referral on their website it’s in writing. You don’t have to go to the local hospital.
If you haven’t had MRI, ask for that as well. Although scans for me have rarely shown much, when I had a hysterectomy the other week, lots of adhesions including ureters, rectovaginal endo. It’s so important to push and not leave it. I had awful issues of frequency last year and this, realised last year that sitting upright caused much of it. I ended up seeing a gynae privately, once I’d had lap he passed me to one of his colleagues that specialises in endo, exactly as NICE guidelines suggest.
I don’t know if this helps, don’t give up 🙂
Thank you so much, for your kind words of wisdom.This is actually my third move to a new GP surgery.
I'm whinge and pretty much have a huge meltdown 😄
I have had a MRI last year, because they thought I had cancer.
I have a lot of adhesions and some tethering, along with fibroid bartholin cyst, 7cm ovarian cyst. A distended tube, deep endo in pelvis, and colon.
I do have IBS, which is causing stomach problems and intense acid reflux....so if numbers 1's not causing me problems, numbers 2's do too!
I previously had severe adenomyosis, with some deep seated endo, 5 years ago, along with endo up my rectum.
That took 10 years for a diagnosis.
I feel like I'm trapped in a 90 year old body! I'm sure they are more healthier than me!
But thank you, I will rang the GP again and request for them to refer me to another endo specialist.
Thank you for the pick me up, it sometimes gets very tiring.
I hope you recovery well....I can not thank you enough
Xx
Let us know how you get on 🙂I can’t believe what you are going through, and they know all this. Make sure they do this as an urgent referral. 🤞 for you 🙂
Endo on my bowel and bladder
Endometriosis and bladder problems
Bladder / urethra endometriosis 
Endo inside the bladder/ weakness
Can endo cause bladder problems 
