Migraines šŸ„ŗ: Hey everyone do any of you... - Endometriosis UK

Endometriosis UK

72,922 membersā€¢53,270 posts

Migraines šŸ„ŗ

abicat1 profile image
abicat1
ā€¢15 Replies

Hey everyone do any of you lovley ladies experience hormonal headakes

There insane and the doctor gives me Betta blockers but I am prone to overdosing so I just use essential oils help massively but yeah just wondering as I get 6 a month and there hella bad also I am on the hormone injection and my estrogen is high it sucks one thing replacing another I used to have bad pain but now I get bad headakes and flare ups of knife dragging pain I am thankful for the injection but oft ouch with these headakes man ? Anyone had anything like it xxx

Written by
abicat1 profile image
abicat1
To view profiles and participate in discussions please or .
Read more about...
15 Replies
ā€¢
Honey_bun profile image
Honey_bun

I suffer with chronic migraines and have to take medication on a daily basis and then medication if I have one. Before medication I had them most days, it was horrendous.

I went to a migraines specialist which was useful. Vagel nerve stimulation can help but the devices were very expensive (I was fortunate to be part of a trial and get one free of charge it would of been Ā£400 at the time)

I have heard accupuncture can help.

I went to an osteopath, as although they were not linked to muscles / bones we get tense from the stress of them and this has an impact. Going really helped me and I looked forward to it, the neck crack was the best.

What Medication have they given you (if they are yellow and pink in one pack they are likely to make them worse) my specialist hated them, they really set me back.

If you are at risk of over dose can you not get a timer realise table container that is locked and someone else has they key? I had to have this when I had a bi polar episode

abicat1 profile image
abicat1ā€¢ in reply toHoney_bun

Thank you yeah they just wonā€™t give me it now full stop cause of history

Priscilla07 profile image
Priscilla07

I have hormonal migraines and I actually find taking the pill etc makes them worse I am afraid

abicat1 profile image
abicat1ā€¢ in reply toPriscilla07

Yeah the injection is making them so bad ! But my normal cycle is hell on earth so šŸ˜­šŸ˜­šŸ˜­

Hi sweet,

I used to get agonising migraines every couple of weeks & be incapacitated for 2 days each time. It all seemed to coincide with my cycle, but I actually found a weird couple of things that would trigger them...

First was vanilla ice-cream, very strange as I can have vanilla and I can have ice-cream, but if I have them together & I get a blinding migraine within 10 minutes.

Second is sweeteners, aspartame & acesulfame k. I used to grab a Pepsi Max once or twice a week when I was in secondary school, when migraines were happening often. After I left, I stopped the Pepsi Max & the migraines went down hugely. It wasn't until years later that I had a Pepsi Max & got a migraine, then made the same mistake a week later & figured it out. This has happened again years later, so I'm definitely avoiding those sweeteners.

This may or may not be helpful, but if I were you, I'd consider looking at possible triggers - your hormones might make you more sensitive/ susceptible to them - this is purely a guess though & something I've done.

I'd recommend keeping a food, drink, medication & supplements diary & learning what the ingredients are (different brands use different ingredients for the same products). See if you can see a trend & take it from there - share your findings with your GP.

Is your GP aware of your migraines?

abicat1 profile image
abicat1ā€¢ in reply toPurpleSynesthesia

Hey yes I found this helpful I was drinking flavoured water and that majior trigged me lol ice cream not so much dono lol but yeah they now want to try me on the second injection you need to do urself still not disgnosed with endo getting very fustrated

Brambledoggy profile image
Brambledoggy

I have had quite a few ocular migraines which is where you get an aura in your eye, like a kaleidoscope, then the gargantuan headache. They are scary. I wonā€™t take hormones any more and havenā€™t for years, because of the stroke risk, family history and Iā€™m just too aware of some very major side effects of most of the chemical hormones they readily dish out, and we put into our bodies. I had acupuncture in desperation for severe endo pain, but COVID put a stop to that before I had chance to discover if it was helping. Havenā€™t had a migraine for a while (fingers crossed šŸ¤žšŸ¼) but I probably just jinxed that by my reply!

abicat1 profile image
abicat1ā€¢ in reply toBrambledoggy

Aw not quiet but sorry to here that x

EndoG profile image
EndoG

Hey, I get hormonal migraines with aura and they knock me out for days at a time. I was prescribed sumatriptan to take when I feel them coming on. I used to take beta blockers too but they want me to use sumatriptan instead now šŸ¤·šŸ»ā€ā™€ļø

Is there somebody who can look after the medication for you and give you the right amount when you need it? Xx

NicolaJM profile image
NicolaJMā€¢ in reply toEndoG

Hi EndoG, sorry to jump on post.. I also suffer from horrific hormonal migraines.. I never had a migraine until I started combined BC - on the pill free week I would get horrific headaches and the GP suggested taking each pack back to back - this worked perfectly. Then in March I had a migraine with aura, I fell asleep in the sun with no sunglasses on and was very dehyrdrated & I think this caused it.. however, as soon as I told my GP this, she told me to stop the pill immediately. Since then for 3 days before my period and 4 days during my period my headaches are terrible, it's making my life a misery.. just checking do Sumatriptan help you, do they take the pain away for a few hours or do you find it stops the migraine altogether? Thank you x

EndoG profile image
EndoGā€¢ in reply toNicolaJM

Hey, Iā€™m so sorry youā€™re going through this too, itā€™s horrible!

It helps a bit, but doesnā€™t get rid of them. It also depends how quickly I take them, if itā€™s straight away then it lessens the pain more, but if I wait 5 mins then itā€™s less likely to have an impact.

Iā€™ve only just started on them, so will see how it goes for a couple of months šŸ¤ž xx

abicat1 profile image
abicat1ā€¢ in reply toNicolaJM

Honestly the only thing that helps id doterra essential oils clarry calm honestly itā€™s been a life saver ! Xxx you need to try it look up clarry calm doterra

NicolaJM profile image
NicolaJMā€¢ in reply toabicat1

thanks - I will check it out.. x

abicat1 profile image
abicat1ā€¢ in reply toEndoG

The betta blockers where shit ! X it was awful

abicat1 profile image
abicat1ā€¢ in reply toEndoG

They just donā€™t give me betta blockers now plus they do nothing for me to but yeah try clarry calm an essential oil it targets hormones xx

Not what you're looking for?

You may also like...

Hello Everyone!

I have just joined this support group, I am a bit shy as I have never used an online support group...
Monti18 profile image
ā€¢

Migraines

Does anyone else get migraines with endo or could it be to do with xoledex putting me in medical...
Chartolfrey profile image
ā€¢

Hi everyone just wondering if anyone can help with zoladex injection?

I had lap in Oct and have severe endo that was treated at time. I've continued to have severe pain...
emal profile image
ā€¢

Migraines

I used to never get migraines but on this pill I keep getting the really bad ones twice a month....
ā€¢

Migraines/Stomach Problems

Hello everyone, Does anyone else seem to have this pattern happen? I seem to go like it sometimes...
Kirstiexxx profile image
ā€¢

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.