Hi all,
Not posted before but found this forum so resourceful!
After nearly 5 years of not getting anywhere with Dr’s & consultants in 2018 I paid to get a diagnostic laparoscopy privately. I had a endometrioma cystectomy, endo was found in other areas including pouch of Douglas. This was ablated not excised. I can’t remember what stage my consultant said it was but in between stages, maybe 2-3? The endometrioma returned within 3 months the all other symptoms were back not long after that. Now, there seem to be even more symptoms than before too.
I have never fallen pregnant in my lifetime, we’d been trying for years prior surgery and hoped it’s would have post surgery but it didn’t.
I pushed to see a fertility specialist on the NHS and after seeing many clueless doctors I finally saw someone that sounded like they know what they were talking about. I wanted to know if I should pursue excision surgery before the IVF route. This consultant thought that wasn’t a good idea, wanted to preserve fertility and push quickly forward with IVF.
I followed him to a private fertility clinic in Essex. I made it very clear that because of countless terrible experiences I have issues trusting consultants and that I really only wanted to be treated by him if I was going to follow him there and pay out so much money. Prior to the first round of IVF I had an endo flare up, I haven’t had this in over a year, Pain was centralised, high up and gastric. I called the clinic to ask if I should go ahead on this cycle or wait but they didn’t really answer me, just said if I felt ok then it was down to me? We went ahead hoping it wouldn’t affect things, 14 eggs collected, 7 fertilised, 3 made it to embryo stage. Was left with 1xA 1xB 1xC. The A was transferred, my test date was 25th October.
On 22nd the same endo flare up started again, called the clinic, spoke to the nurse and consultant who couldn’t really help and told me to get to hospital if it worsened. The next night I was in agony, never had anything so bad in my life but no sign of period. Went to A&E they found infection in my blood but couldn’t pin point where this was coming from, high white blood cell count and very high inflammation marker all pain was high stomach, contracting type pains and lower side shooting pains, couldn’t walk or lay flat. Wanted to prescribe oral morphine but needed to check with clinic first, my A&E doc spoke to the clinic directly on the phone. The clinic left it to the doctors discretion to prescribe..!
All pregnancy tests done 24/25/26th October were negative, then period came.
I was not treated by the consultant once that I saw on NHS. Also, to date I haven’t heard from the clinic considering they know I was in A&E I am so disappointed by.
I don’t know if I should have gone with my gut feeling and perused excision surgery first and also don’t know what the usual protocol for IVF patients with endo is?
Is there such a things as a fertility clinic specialising in endo? I can’t find anything!
I knew it had to be impossible to fall pregnant via IVF if it’s not happened prior to surgery and it’s never happened before that. I was right! I always thought it was an implantation issue too but never had bloods tested for that as my comments were dismissed.
Is there anyone out there with similar circumstance? Most with endo know that can at least get pregnant initially but I’ve never even had that.
Just feeling so low and I’m am not that kind of person at all.
Thanks for reading my long blabber xxx