Constant need to wee and Endo

[Littlenestofvipers]

I was wondering if there’s a link to my bladder seemingly always being full and Endo? I’m still awaiting laparoscopy for full diagnosis but the MRI has already Endo on my right side.

Before I go to sleep at night I need to pee about 10-15 times in an hour before I can finally drift off, I’m then awake probably 3-6 times in the night needing to pee. Not to mention that during the day I also have to go more or less every half an hour!!! Anyone experience this?

I’m only 25, have had no kids so that’s not a cause at all. I was previously a reoccurring UTI and kidney infection sufferer, infections every other month and sometimes multiple times a month.

Thanks guys! Hope you’re all doing ok, today has been nice seeing all the Endo coverage on the news!

[Nicjane]

Hey! So sorry to hear about that its a pain to not feel well rested for an irritated bladder. I have experienced this at my worst i go around 7 times a night-so not as bad as yours but i got a few tips. Of course im not a doctor so take with pinch of salt😊

When i feel super irritated i take a peppermint capsule from holland and barret and i feel like it cools down my bladder. I only take one with room tempature water an hour or two beofre bed usually. I try to cut out fizzy drinks if i do i try to get sugar free and ley it go a bit flat😂 consitpation makes my bladder feel more irritated i swear so i try to make sure i take my bowel medicine sincei have chronic consitpation also.

Avoiding or cutting down spicy/citrusy food. Yoga, pelvic muscle exercies, and always stay hydrated its annoying to go a lot but not drinking to cut down toilet visits may lead ti more problems always ood to flush system out but maybe try not to have a big glass before bed!

The news coverage been great 2020 hasn't been a good year for most, but hopefully its a step forward for the endo community, stay safe and always call a gp if these problems concern you, if 3pyu see blood, changing colour urine, flank pain please seek further guidance!

P.s its 2:20 am i hope i make sense lol.

Stay safe💟

[Endolady22]

Hi there,

Reading this was very emotional for me as your story is so similar to mine ! I am thirty, and have had constant utis since I was 17, most the time the GP would put me on antibiotics and then send away the test to the lab.. but the test wouldn’t grown anything further and it would be considered not a uti, which was very confusing. For the last year I have been going to the toliet constantly at night, before I can settle and go to sleep.six weeks ago I ended up in ER with a suspected kidney stone. They have recently found a endometrioma on my right ovaries. My gynaecologist wasn’t interested in doing a lap at this stage but I have gone back to my gp and pushed to see another specialist. I wish all the best you your journey! I hope you find some answers soon! The uti and constant urination has driven me crazy for so long.

[Endolady22 in reply to Endolady22]

And I go to the toilet about the same amount as you, it’s constant at night (feeling like I can’t empty my bladder) as soon as I wake up I feel a pressure in my bladder and like I need to go straight away. It’s horrible, I really feel for you

[Littlenestofvipers in reply to Endolady22]

I am so sorry that you are experiencing the same as me 😞 it’s honestly horrible and I never feel well rested, I have Ehlers Danlos syndrome as well as endometriosis so I already always feel exhausted and then this just tops it all off 😞 my boyfriend thinks its a psychological anxious thing rather than a bladder problem but I disagree as I have A LOT of wee come out every time I go before I sleep or in the middle of the night! So it’s definitely some kind of bladder emptying issue... I just wonder if the endometriosis has fused to my bladder as you so often hear...

So sorry to hear that you ended up in hospital 😞 I do hope you’re feeling a bit better now?

Isn’t it so bloody crap that we have to deal with all this!

Thinking of you and sending love 💖

[Littlenestofvipers]

Thank you for your reply! It’s frustrating isn’t it 😖 this was a particularly bad night of mine, others aren’t as severe but the sleep is always disturbed!

I will have to try peppermint capsules! I haven’t tried them before. I never drink fizzy drinks as dont like them fortunately, I’ve tried stopped drinking at 9pm and only having small sips after that but it’s still bad so I might have to stop drinking earlier and maybe even cut the small sips 😐 I’m a big water lover, all I drink is herbal tea and lots of water! Not being able to have more than a few sips of water at night is so difficult.

Oh no spicy food is my favourite too 😭 sadly can’t do yoga as I have Ehlers Danlos syndrome, have always wanted to though. I may try meditation...! Like a guided meditation (without any soothing waterfall sounds of course! 🤣)

Thank you so much for your detailed response, stay safe too! Xxx

[Endolady22]

I have also been told that my toliet issues are all to with anxiety, but I know this isn’t true and I also have a lot of urine come out each time. I do however believe that the anxiety that comes from having these problems makes the symptoms worse. I’ve recently tried a completely different approach and gone to see a chiropractor.. the stress of having the symptoms and worries about them can cause so much tightness in the body and make the symptoms worse. The chiropractor was amazing and used a very holistic approach, I feel so great and hopeful after seeing her and at trying something new. Just a suggestion.. for you, I always considered chiro’a just to deal with backs but that work with the whole body :).My urinary symptoms have been getting alot worse at night the last couple of weeks and I noticed I would wet myself a little straight after going to the toliet so was desperate to try something new. Hope things are getting a little better for you x

[Bubble_by in reply to Endolady22]

I have been told the same thing too. I have pelvic floor dysfunction and I think this could be causing some bladder issues with me. I will be seeing a physiotherapist in a couple of week, so I hope that she will be able to help with my symptoms.