Does anybody else have a burning sensation in their hip when laying on their side?

[Ticklecat79]

For the longest time I have been unable to sleep on my side due to a burning sensation in my hip/groin. I was wondering if it’s endo related... I recently got a new mattress and it’s still happening so it’s not that.

[LizzieBW]

Yes, me! 100% but only on my left side where I have endometriosis on my ovary and had it removed from left side of pelvis. It happens when I cross my legs on that side or when I lean on the couch to that side etc etc. It sometimes travels into upper thigh, down left thigh and inner knee. The intensity of the burn/pain depends on where I am in my cycle too xx

[Mrss25 in reply to LizzieBW]

Hi can I ask if you still have endo please as I am having the same even after hysterectomy, many thanks xx

[Ticklecat79 in reply to Mrss25]

I have had the pain even after both laparoscopies unfortunately.

[Mrss25 in reply to Ticklecat79]

I am sorry to hear that x I had total hysterectomy 5 years ago and the problems are coming back and I am struggling with the same pains, and its getting to the point my hip hurts and this was all happening before the operation..its a struggle getting someone to help but I wont give up yet

[Ticklecat79 in reply to LizzieBW]

It is more on my right than my left side where I have a “chocolate” cyst but I just wanted to make sure it was connected haha. It’s a horrible feeling though. I tried to power through it a few times but it gradually gets more uncomfortable. Glad I’m not alone but also sorry that you go through it to! Omg yess mine travels down my thigh too when I cross my legs!

[LizzieBW in reply to Ticklecat79]

In my case those symptoms are connected to my endo, definitely. I've had them for years, initially not realising what they were and after surgery the pain was different, healing pain for months, a good few months partial relief and then exact same symptoms came back 2 cycles ago. Sorry you've struggled with pain from it as well ☹ I noticed from your other reply you've had 2 laps already. Hope you don't mind me asking, are you due any check ups for endo and/or using meds to control growth? Xx

[Ticklecat79 in reply to LizzieBW]

Yeah I assume mine are connected.. I can’t think of anything else that could be causing it.

I had my latest lap 3 years ago however my symptoms came back last year. Currently the consultant has put me on Marvelon along with the Mirena coil I had inserted during the lap. They didn’t want me to have another lap so soon as I’m 23. Touch wood it’s calmed my symptoms down again! How are your symptoms? Have they returned quickly after treatment? Mine seem to return every 2/3 years after a lap

[LizzieBW in reply to Ticklecat79]

I can understand your GP/clinical team not wanting to do too many surgeries. That's a pretty decent stretch you get then but equally the thought of surgery or intervention every 3 years also seems extreme doesn't it ☹

My treatment is different because I'm going through IVF and the endometriosis is affecting my ability to conceive so we're constantly chasing it without hormone treatment. Had my last op last summer & looking like I might need another, symptoms returned exactly 1 year after op actually. The op doesn't phase me but the thought of being in hospital during Covid freaks me a bit! Hope you're doing okay & managing to get around your pelvic pain xx

[Hidden]

Ive got the burning sensation on my right hip, it travels up my side and into my right thigh. Ive had mri scans and the physio thinks its either endo/adhesions impacting my nerves. I cant lay on my right side or put any weight on it when i sit down. At certain times of the month i cant walk prpperly either. Ive mentioned this to gyny but the response i got was its not a priority. Heat really helps me ans i take nortryptline 50mg on a night as the nerve paon stops me sleeping. If it starts getting worse id ask your gp to see a physio, they can order scans to see if they can see anything non endo is causing it.