Help 😭

[Topshopdreams123]

Hi everyone I hope your all well.

I’m really at my whits end at the moment. I have suspected endo and was suppose to have lap in April but of course covid ruined that! I’m having extreme pain flare ups every month or so and each time I get a flare up it’s worse than the last. I don’t usually have a period as I have the implant fitted but have been bleeding every 4/5 months and when I do it’s horrific! I was bleeding for 2 weeks recently and it was really heavy and full of clots. I stopped bleeding on Saturday and the pain seemed to settle but today, 5 days later I’ve started bleeding again and the pain is back worse than ever! I’ve tried ringing the hospital and asked for any update on when they will be starting procedures again but they just keep saying hopefully soon. Any suggestions of what you would do next? I’m just at the point where I don’t know what I can do!!

Sorry for the long post! X

[Mheulgio]

Sorry-I have no help for you. Just sorry it’s so bad. Hang in there.

[EndoJaz]

Don’t give up hope. My surgery in March was cancelled then a few weeks back had a phone call out the blue booking me in Sept 14th. Fingers crossed u will hear soon x

[Topshopdreams123 in reply to EndoJaz]

Hopefully I will hear something soon. I keep ringing just to check. Hope your surgery goes well. What are you having done if you don’t mind me asking? Xx

[EndoJaz in reply to Topshopdreams123]

It’s a diagnostic lap. Had hysterectomy 3 yrs ago but left ovaries but pain on right continued so here we go again after 3 yrs of being fobbed off with its imagined pain. We shall see. Hope u don’t wait too much longer x

[Topshopdreams123 in reply to EndoJaz]

Fingers crossed you get sorted for good rather than being fobbed off again x

[Thecrazypugglelady]

I would Keep ringing or email with a really detailed explanation of what you are dealing with make them know how much its affecting you. If the consultant doesn't respond ask the doctors for an urgent referral. Please don't give up I was told 6 months for an appointment I've kept on as I'm struggling I had a phone call last week got an appointment Monday 😁

[Topshopdreams123 in reply to Thecrazypugglelady]

That great news that you have an appointment on Monday! Hope you get sorted. I rang yesterday and they said still no further on 😭 they are helping with nhs urgent cases at the moment. I felt like saying trust me I’m urgent but so if everyone in this situation aren’t they xx

[Thecrazypugglelady]

Ohno! Yes there is that hopefully they know you are chasing and hurry it all along for you 🤞