Fed up of bleeding!: Hi I'm new to this... - Endometriosis UK

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Fed up of bleeding!

Bluemoon6 profile image
4 Replies

Hi I'm new to this group and so grateful to have found that there are others that can understand what I'm going through (not that I would wish it on anyone but I find that those without it to just dont understand). I dont suffer with pain particularly anymore (it was horrific before I gave birth to my eldest and would make me sick) just heavy, erratic bleeding. I had a 6 day period a couple of weeks ago then less than a week later another. (I had one 18 days before that and they usually last 7 days) I'm now on day 6 of this and it seems to be getting heavy again. Does anyone else get this? I joke about having to wear 'nappies' (which are actually tenna lady type pants) along with the maternity pads during the first few days of my period it is that heavy, although it is not funny if I dont try to get on with it I would spend the whole time crying (which I did do the other day as I am so fed up!) I'm currently waiting for an ultrasound and MRI but who knows how long that will be. I should add i was diagnosed with endometriosis 2.5years ago from an ultrasound and during my latest phone consultation they have suggested it is in the advanced stages.

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4 Replies
Rjb_88 profile image
Rjb_88

I feel your pain, my GP gave me a higher dose of northisterone two weeks ago as I’d been bleeding for seven weeks - it’s just so brutal isn’t it.

I do find that tranxemic acid really helps to slow a heavy bleed down and northisterone is working for now too x

Bluemoon6 profile image
Bluemoon6 in reply toRjb_88

Thank you, I am going to ask my GP about those and fingers crossed it will help x

mrskiki profile image
mrskiki

I understand, I felt almost housebound for certain and unpredictable days of the month until I finally hit Meno. Doctors told me you lose a tablespoon of blood on your period and it was just other fluid making it look bad, yet I couldn't plan travel and had to use my holiday for ad hoc days off work as it bled through all ultra super plus plus or whatever within minutes. Some real disasters ...

Finally in my 50s during an op they said I had had undiagnosed endo all those years.

I really hope you get some answers soon and don't let them fob you off. I really think they don't understand the real physical impact of how much blood some of us lose. It's not just the pain and emotions they have to try and find an excuse for. Xxx

Bluemoon6 profile image
Bluemoon6 in reply tomrskiki

Thank you, that has made me feel a lot better knowing I'm not alone, although sorry to hear you had to go through all that. It is all consuming when it happens isn't it? You have to constantly think about having everything with you, where there may be a toilet, what you will do of it happens. I work as a TA so can't use holiday but they have been understanding on the occasions when had to be at home as it was so heavy that I was having to change every 20 minutes. I was surprised my blood count was fine when ended up in hospital one time but maybe if only losing 1tbsp of blood that is why. Hopefully I will have my scans and get it sorted soon x

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