I have recently been diagnosed with endometriosis as well as a cyst following quite a traumatic experience of heavy bleeding and pain following intercourse with a new partner. I am finding the whole thing very tough as I live alone and don't have any local friends or family. In addition, the restrictions of the pandemic have made it feel a lot more isolating, and I'm quite depressed, its perhaps melodramatic but it feels like an end to the possibility of me finding a partner (the man i mentioned is not interested anymore because of the diagnosis).
That's all a bit tmi and doom & gloom, venting a bit as had nobody to talk to about it. I'm looking forward to reading everyone else's stories here and getting to know people. Thank you for reading - Laura 🙂
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snorklaura
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Hello. I’d say the best thing that has happened to you is no longer being with the man you mentioned, who IMHO doesn’t deserve you anyway. Read my profile, rather long I’m afraid and let me know if you have any questions or I can help you. I’m 49 and can try. Nina.
Hello lovely, well firstly good riddence if he can't want you because of your diagnosis he's clearly not the right one for you. Secondly I find this site brill and there's so many nice people to talk too. Can I ask what your treatment plan is now... Xx
Hey Laura, welcome! 😀 so sorry to hear of your recent experience, there's so many people on here who can relate and help so you are in a good place.
First of all, anyone who has that attitude towards your diagnosis is an absolute waste of time, be glad he's gone so that you can truly focus on yourself, loving yourself and getting to understand everything, and also your diagnosis. You truly need someone who understands how you feel and is there for you, understanding the condition and diagnosis can be scary for them and may take them a while. I think for some guys its shock because they actually don't know what it is or understand it and don't want to learn, perhaps they are worried or just don't get it. Men are from Mars after all 😂
You will find the man for you, promise. And with regards to them understanding your diagnosis I've been with my partner 2 years and he's only just understanding it fully now, after I've had excision last week, I think it hit home for him! He of course was understanding of it even at first, but he never really spoke about it or asked many questions, but we had a mutual understanding that I had alot of symptoms and didnt feel good sometimes.
What is your treatment plan looking like going forwards?
I am also a member of a facebook group called "the endometriosis foundation", it is a private group with around 7.5k members, I only joined a couple of weeks ago and find it super helpful in finding like minded people, you can post to make friends, ask questions, share anything TMI for advice or help or even just a little vent, it's a really safe space. We're all here for you 🙂
So sorry to hear you’re finding things abit stressful at the minute! I joined this site a few months ago - animists the height of Covid as I was really struggling with what I believe is Endo. I’ve just turned 24 and recently moved in with my boyfriend which has really helped with the general stresses of life that for me seem to trigger endo symptoms.
This week I have received my surgery date trough for a diagnostic laparoscopy - so I am starting to get rather nervous but also very exited that it’s finally here.
Please feel free to message me for any advice or just a general rant/ vent!!
I’m feeling pretty optimistic right now with the surgery looming - however I have had some pretty dark days recently and leading up to getting this date through and I have found everyone in this site to be so helpful and it is really reassuring knowing that the things you’re feeling aren’t in your head!
I'm sorry to hear you are finding life tough at the moment. This forum is a great way of communicating with other women who understand what you are going through.
You could also check our website to see if you have an Endometriosis UK support group nearby. A list of all our groups can be found on our website endometriosis-uk.org/find-a.... At the moment our groups can't hold face to face meetings, however many of them are holding online meetings and also have private Facebook groups.
If you feel you could use some one to chat to, you could phone our Helpline. The Helpline is staffed by volunteers who all have experience of endometriosis, they can provide support, information or just someone to talk to. The Helpline number is 0808 808 2227, opening times can be found on the website endometriosis-uk.org/helpline.
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