Bye sleep!

[Disney89]

So last night began the waking up in the middle of the night in excruciating pain. It took so long for me to get to sleep. I had to take a double dose of medication just to get some form of sleep. And due to the heat at the moment and needing a hot water bottle to provide some sort of distraction (I don’t find it actually helps but psychologically it makes me feel like I’m doing something) I then slept on the sofa with nothing on and the fan on full blast.

Last weekend my appointment for the gynecologist got pushed back by a month and a half, so I am struggling emotionally and physically with the prospect of having to wait even longer. This is my second, I don’t know what to call it ‘bout’ of endometriosis in 2 years. Had surgery June last year and by March this year it was back. And determined to be more of a bitch than before. I called the doctors this morning to see the if GP can chase up the hospital and I was asked ‘can it not wait until next week?‘ Part of me wanted to just shrug and say ‘sure, what’s a few more days of pain’ but I stuck to my guns and said ‘No, it has to be today!’ Last year I ended up in hospital because of the pain and I don’t want that to happen again.

I’m flat out at work at the moment and can’t afford not to go in so my evenings and weekends mostly consist of me sitting around hugging my hot water bottle or going to bed so I’m not conscious enough to feel the pain.

I live with my boyfriend at the moment and he’s so supportive and amazing. But I know it’s such a strain on him. We don’t have sex anymore because the pain I experience afterwards is so bad it’s just not worth it. He’s such an outdoorsy person and I struggle being able to walk around the supermarket. So that’s tough too.

I have an amazing support system, my family and friends are the best but they don’t understand how difficult it is to just watch the clock for when I can take the next lot of meds.

Sorry for the crazy long post and if anyone gets to this bit thanks for reading all the way down. I just need to get things off my chest to people that will actually understand.

[plotments]

Hi totally understand everything your going through and know how difficult it is living with endo. Sometimes it's good to just have a rant helps clear your head a bit.

So glad you've got plenty of support around you but it can be hard to explain things to someone who doesn't suffer with endo please feel free to message me if you ever need a chat or rant...haha

Good on your for pushing docs I hope it gets you somewhere faster......sometimes I think we have to be bitches to be heard!!!

take care

[Moon_maiden]

Don’t worry about the length. Normally when I get pain in the night it’s due to constipation.

I’ve started amitriptyline for nerve pain, but that takes a while to work.

Hope you get sorted soon, keep trying for cancellations as well. Your GP can message them if need be.