Hey! I’m new to this 💖 introduction to m... - Endometriosis UK

Endometriosis UK

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Hey! I’m new to this 💖 introduction to me/I’d love to have someone to talk to 💕

VioletSapphire_
VioletSapphire_

Hey! I’m new to all this, so here it goes! I was diagnosed with endometriosis in November of 2019 without surgery. I have since deteriorated, my laparoscopy was meant to be in June was cancelled with the pandemic, is now in August (next month yay) I am on the zoladex injection. But finding the longer has been on it, the less affective it is becoming? It has gone from helping the pain to the pain creeping back in and I have started to see a pattern. I am so close to my operation. Yet each day is a struggle. I am spending my whole life in bed and mentally not coping. I know I haven’t got long to go to get to the bottom of all this ❤️ They believe due to my symptoms it is more on the severe end and they believe it is affecting not only my ovaries but my bladder, bowel and kidneys. I just hope it isn’t as severe as they think or if it is, it isn’t so severe I have to have organs removed. I know this pain isn’t half as bad off the zoladex injection. As off it, it is unbearable and I spend my life on a hospital ward and in A&E. But I was wondering if anyone has experienced this with the zoladex injection waring off and pain creeping back in? Any tips of how to help relieve the pain I may not have tried? Any advice about the operation? What to expect? What did you wish you did, or took with you when you went? I am really struggling so would love someone to talk to. Thanks in advance ❤️ #Zoladex #Laparoscopy #Surgery #ThisIsMe

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Hidden
Hidden

Hello there.... I'm quite similar to you I'm 29 and having an abdominal hysterectomy in 2days time. I've just come of zoladex were you taking hrt with it. I unfortunately found it didn't help with pain what so ever and I had more hospital admission whilst taking the zoladex. For pain, have you tried mefenamic acid this is specific for pelvic pain, if so then the only other option would be stronger pain killers which can interfere with your bowel movements and make you constipated you don't have long to go so maybe ask your gp for something stronger to tie you over in the meantime whilst your waiting. Don't worry about the surgery (says me who's petrified to be sliced open) it's not to long of a procedure and this is there routine daily jobs.... Just another day in the office for them hun!! Xx

VioletSapphire_
VioletSapphire_ in reply to Hidden

Hey! I am a so sorry to hear what you’re going though and I am wishing you all the best for your operation today. I hope it has gone alright and wishing you a speedy recovery 💖 I wasn’t taking HRT I was taking the tipalone with it though. I’m so sorry to hear that. I actually have found that it did help my pain, but it just started to ware off. I haven’t tried that but will definitely suggest it to my doctor. Bless your heart ❤️ Thank you so much, that is so very true. Wishing you all the best xx

Hidden
Hidden

Hi, joining for the first time aswell, I’m 48 and I’ve had endometriosis since I was around 15 and as it wasn’t as well known so I had to work things out myself, I agree that the mefanic acid tablets do help also my dad used to give me his tablets for the pain which was unbearable and I couldn’t go to work, they were called Naproxen, in my 20’s I discovered natural herbs which I found to be useful as they level out your hormones.

VioletSapphire_
VioletSapphire_ in reply to Hidden

I’m so sorry to hear that. How do you find your pain now? Is it difficult to handle/keep under control? Aw that’s amazing bless your dad. I sadly cannot have Naproxen, as I am allergic to all anti-inflammatories. That’s great which natural herbs did you use?

Hidden
Hidden in reply to VioletSapphire_

I found the pain subsided once I had the laser surgery, then it started to return and I had the surgery again around 10 years later, then I got pregnant straight after which was a nice surprise considering I never needed contraception as I wasn’t fertile, once you have children it seems the pain hasn’t come back 13 years on. The herbs I used were from a natural herbalist who was based in a local chemist she made me a mixture to add to water to drink daily I think some of them where capsicum and black cohosh. Good luck.

Hey, just wondering how long did it take for you to get diagnosed ?

I haven’t been diagnosed officially by laparoscopy yet. I have been diagnosed from my surgeon November 2019, he told me if I responded to the zoladex it was more than likely endometriosis as it responds well to that and if not it was something else and I responded really well. I have been suffering for years. I would have to work out officially how long but definitely a long time.

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