Back to square one: So i had a bad reaction... - Endometriosis UK

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Back to square one

DAML8 profile image
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So i had a bad reaction to ‘pregabalin’ (which was not making a difference to my pain anyway!) ‘gabapentin’ no success either. Last one i have to try on the pain specialist’s advice is ‘duloxetine’ but it’s part of the same family as the previous 2 drugs so I’m not holding my breathe. I am currently on nothing for the pain..I don’t want to go back onto oramorph (as I’ve been on it for last 5+ years) but i also cannot continue in this daily pain. I don’t know what to do or who to turn to. Im sick of living each and every day in constant pain.

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DAML8
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Whoisthis profile image
Whoisthis

What’s the plan for surgery? Assuming you are taking these drugs from endometriosis pains.

DAML8 profile image
DAML8

Yes for endo pain. I’ve had 5 surgeries in 4 yrs. All unsuccessful and Consultant said he’s not willing to operate anymore in the future. My GP has referred me for a 2nd opinion.

Moon_maiden profile image
Moon_maiden

I’m aiming to get a private appointment with the pain consultant who is part of the BSGE team, I’m still waiting for them to have their MDT meeting. Thought I’d move things on myself (again 😡)

The pain nurse put me on Tramadol to try the other week at A&E.

I’m potentially going to aim for a nerve block, don’t really want anymore injections, but desperate.

Hope you can get help soon

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