Finally getting a laparoscopy, afraid I’ll go back to square one.

[Coco1860]

Hi everyone!

I’ve finally been given a date for my diagnostic laparoscopy after a long wait and I’m genuinely excited to get some answers, but I’m also finding that I’m really worried that they won’t find endo? I’m so scared that I’ll be back to square one with no answers as to why I’m in pain and have all these symptoms. It sounds quite selfish to say that I’d rather they find endo than not, but at least if they find it I have an answer! I hope this makes sense. Does anyone have experience with this? Either having the same worries as me or having a laparoscopy and finding out it’s not endometriosis?

Thanks guys!

[Sleepy_Leopard]

hey, I had the exact same fears ahead of my laparoscopy! I just wanted to find out what was wrong. I did find out i have endometriosis but what was causing most of my pain was non endometriosis adhesions attaching my organs to my insides down my right side. Which I never would have guessed but that was “fixable”. I think the most important thing to do is trust yourself and if it comes back clear then ask a second opinion or maybe try a different route such as urology if you symptoms are around that area also! I wish you the best of luck xx

[Coco1860 in reply to Sleepy_Leopard]

Thank you so much for your reply, it’s nice to know I’m not alone in worrying about this.I guess I’m just dreading the possibility that I’ll have to go through the whole process of getting referrals and convincing specialists to take me seriously if they don’t find endo 😩

[Sleepy_Leopard in reply to Coco1860]

I honestly felt the same, I was so nervous as I just wanted validation. But even if it’s clear they might have missed something or it might be caused by somewhere else. I know it is so hard as you start to doubt yourself but honestly you know your body and you just need to trust that! xx

[AnekaH Moderator Endometriosis UK]

Hi Coco1860

We are wishing you the best for your upcoming surgery, and hope that you finally get some answers.

Sending lots of good wishes from the Endometriosis UK team.

Aneka x

[Coco1860 in reply to AnekaH]

Thank you Aneka x

[Rocket14]

Good news you have your date for your Laparoscopy. I had the same feelings, starting to believe others that I couldn't be in so much pain and it was in my head.

Coming round and finding out organs were stuck together, endometriosis in so many places and that they found a tumour in my bladder was a shock but at the same time happy to know my issues had been found. Now waiting for biopsy results of tumour, I'm keeping positive.

Endometriosis is a condition that people can't see or understand unless they have experienced it.

Try not to worry, be as positive as you can. Remember to take peppermint Cordial, or extra strong mints or

Peppermint tea to hospital as it helps with the gas they insert during Laparoscopy and use a cushion travelling back home in car. Rest up and whatever results you get, pain is real and horrible to live with.

Thinking of you

[Coco1860 in reply to Rocket14]

Thank you so much for your kind words. I do feel like I start to believe it’s all in my head sometimes, but hearing other people have similar experiences helps. ❤️

[Kay92jay]

Hi Coco, I had my laparoscopy on Tuesday. I am waiting for my answers from gyno, but won’t know until 8th august, so I know exactly how you feel. Sending lots of love and good luck to you, x

[Ylime90]

I felt exactly the same. It is really odd to be hoping to have a chronic condition, but the only thing I remember saying to the surgeon when I woke up was "I'm not just going mad". Before I went in I tried to tell myself that if they found nothing to see it as ticking off one more cause of pain and before continuing.

Best of luck with the lap, and with getting answers.

[Coco1860 in reply to Ylime90]

Exactly! I feel almost guilty for wanting to be told I have a chronic condition, but I almost feel like without that diagnosis I have no real answers! Thank you for your reply, it hits close to home!

[LDee2022]

Hey! I had the exact same feeling before my diagnosis and was starting to worry that i was over reacting to the pain. No matter what your diagnosis is, you have to get to the bottom of what is causing these symptoms anddo not give up.Peppermint tea definitely helped with the recovery in the first couple of days after my surgery and maybe have sweet treats ready - I really craved ice cream and coke!

Wishing you lots of luck xx

[Savagetornado]

Hi, I had a similar experience where I thought it wouldn't be endo after years of being told it was all in my head(the horrendous pain etc). In my case it turned out it was endometriosis but it may not be for you, just trust your instincts and know that your doing everything for your health and wellbeing. I wish you the best of luck and hope you get some awnsers.