Opening up finally : Good morning everyone... - Endometriosis UK

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Opening up finally

Lost2020 profile image
9 Replies

Good morning everyone,

I don’t usually post anything about myself on any social media especially so tho g so sensitive to myself

I am 28 and have been with my parter for some time now and I took a pregnancy test and it had a really faint line so as anyone would I got some more test and took some more again I had a really faint positive and 2 bold negatives, I went in clinic, had a scan but they found nothing and told me it was just a flare up.

I have been having all they symptoms of a pregnancy I.e not being able to keep anything down, puffy feet , smells , cravings cramps down there the lot, I was so disappointed when I was told there was. Nothing there

Just recently I am gaining so much weight I was a 12 on a space of month I am now In a 14-16 size,

I know it’s going to be a struggle for me but me and my partner are actively trying for a baby but it’s not working what can I do to help this ....

Thank you in advance

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Lost2020
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9 Replies
Moon_maiden profile image
Moon_maiden

Sorry you are going through a tough time, this condition effects things in so many ways.

I can’t answer you query directly as I haven’t had children, the last few months won’t have helped though. Have you spoken to a gynaecologist about trying to get pregnant? If not you should get a referral.

Take care

Lost2020 profile image
Lost2020 in reply toMoon_maiden

Thank you for your comment :)

I have been the the gyne clinic and they opened me up and burned the endometriosis away with the pains I have been getting it’s very much the same as before, my doctor have said about putting me on the pill and I have explained to them about trying for a baby, but then COVID-19 struck and I think they have no referred me back to the doctors.

As you can understand it’s super frustrating I to do not have children and it’s always been what I’ve wanted.

You don’t understand just how much someone reaching Out has meant to me, with the side effects of this condition it’s messes with people mental health and with suffering for so long I’ve isolated myself from all my friends I don’t see,hear from anyone I’ve felt completely alone and as much as I love my partner and he do I, I don’t think he understands the condition and just how bad it’s gets.

Thank you again it’s very much appreciated x :)

Moon_maiden profile image
Moon_maiden in reply toLost2020

Try looking around at local hospital gynaecologists and checking them online for fertility and endo and asking for a specific referral. They will be out there. I must admit booking a private consultation initially worked for me, but it’s not always feasible. My concern when I did was I wouldn’t see the consultant, but a trainee, I wanted answers not half hearted conversations.

Have you shown your boyfriend the forum and info on the endo UK site, and your friends. If you have women friends you may even find that one of them could be suffering and feels the same way as you do. I’ve discovered at least one person I know who’s had severe endo that I didn’t realise, I think two though. Have you had a good chat with your boyfriend? He obviously cares a great deal about you and would likely want to be more supportive and understand more. Take him with you to GP, maybe, depending on how you feel about it.

It’s a condition that isn’t talked about, yet it effects so many. I know how you feel as so many here do. I’m sure someone will post that’s been through the fertility side of things.

Has he watched the film alien, to me it feels at times like the alien is about to burst forth, either that or Id happily feel I could open myself up and rip it all out 🤣, slightly extreme though...

Feel free to show him my comments 😀

Lost2020 profile image
Lost2020 in reply toMoon_maiden

I will definitely be ringing the hospital on Monday and ask for the referral, after the scan I’ve just had me and my Parter discussed the possibility of going private maybe I would get more answers that way.

He has came to the appointments when he has been able to get time off from work I think showing him the website is a really good idea, as for my friends I have previously checked into places on social medians noted endo scan (Again) but none of them have reached out, I only hear from them when they have something wrong and I don’t get a word in on the phone.

As for the film he has seen it 🤣, he has also seen first hand the pain I can be in and me being sick over the slightest thing.

Thank you again for reaching out :) 😊xxx

Afrohair profile image
Afrohair

Please take a look at my page and posts x

Lost2020 profile image
Lost2020 in reply toAfrohair

I will definitely take a look now 🙂🙂 xxxx

Linley profile image
Linley

Hi

Moon_maiden has some good points, and do understand anxiety about getting pregnant. All I can suggest is what a GP told my 2 Endo buddies try to relax and have quality sex as us ladies tend to get anxious and tense when trying for a baby. Wish you good luck hope you get your referral. 🍀and if you need ladies to "talk to" get back to us on this site.

Lost2020 profile image
Lost2020 in reply toLinley

Thank you for your response, it’s been a bout of a hectic 2days, I think for any couple in my environment would see/ feel pressure From w are trying out new things in the bedroom to see if we can be more relaxed I’m going to give the hospital a call shortly I’ll let you all know how I got on xx

Linley profile image
Linley in reply toLost2020

👍🍀

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