Cyst after hysterectomy : Hi everyone, I... - Endometriosis UK

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Cyst after hysterectomy

KimPV profile image
8 Replies

Hi everyone, I had a hysterectomy over a year ago and have bee great . It should have been a surgery that removed my ovaries too as that was what was causing the problems. I’ve been having back and stomach pain for a few weeks now and all tests were clear so I went for an ultrasound to see if it was kidney stones. She asks if I still had my ovary as I have a cyst the size of a satsuma where it would be! I’m in total shock! Can this really happen? I definitely asked for them to be removed and to be honest I feel really crappy now:( at least I know where the pain is coming from. But to be told my ovary that’s caused me all the pain might still be there is awful...

I have to wait now to see my dr so she can look at the results and compare to my surgery notes...

So upset right now

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KimPV profile image
KimPV
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Christin_a profile image
Christin_a

There is something called ovary remnant syndrome. Which is where a small amount of ovary cells are left during removal and it can turn into cysts etc.

So the ovary could have been removed but a small amount of the cells were accidentally left. Maybe have a look into this. And if you think somehow your ovary may still be there ask for your medical records.

Munchkinola profile image
Munchkinola

Hi, I am so sorry to hear this, what a shock for you 😔

Can I ask was it open surgery,

KimPV profile image
KimPV in reply to

No keyhole

in reply to KimPV

Ahh right, I'm just trying to find out what it's like afterwards iv got open surgery in 13 days xxx

KimPV profile image
KimPV in reply to

I hope it goes well and you feel better for it.I don’t know anyone who has regretted having it done. Just make sure you rest rest rest xoxo

in reply to KimPV

Neither do I although iv heard its very painful after having it done through the abdomen xxx thank you lovely xxxx

KimPV profile image
KimPV

Had my lap today and they found a mass which seems to be ovarian . He is as shocked as I am as he said all my scans and reports after the hysterectomy were clear and showed nothing but the cyst. But there it was, he is pretty sure he got it all so now it’s recovery time and wait to see what the testing on it says. There’s a chance it may not be ovary but will find out I. A few weeks or so, if it is ovary I think I will put in a formal complaint. I went though all this surgery for a remnant to be left behind and I’m now in hospital again having yet more time off work and it is mentally and physically exhausting xx

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