No end in sight

[DAML8]

Anybody else struggle to come to terms with the fact that there is no cure for us? All my previous ops have been unsuccessful!...and my consultant has said that he’s not willing to operate on me anymore in the future. I’ve tried over 25 different pain medications, none of which have even come close to touching the pain. So basically i just have to learn to live with this excruciating pain, day in, day out! 🥺 Knowing that there is no cure crushes me, i cannot put up with this for the rest of my life. Sorry for the negative post, just feeling low at the moment.

[Rosesimba]

Same here I am in the same boat and I'm 21 and been told if this last chemial fails its a hysterectomy 😭

[DAML8 in reply to Rosesimba]

So sorry to hear that! I’m 34 next week and had a hysterectomy 4 years ago then my ovaries removed a year later...made absolutely no difference to me and my pain unfortunately 😒 what chemical you on? x

[Rosesimba in reply to DAML8]

Trying a different type of birth control pill as a last resort as all the other options haven't worked at all or for very long

[Hidden]

I feel your pain hun and I’ve decided no more treatment. I am 44 had 2 children 3 laps and 10 years of zoladex and marina coil. Came off everything a year ago to give my body a break. For a whole year I had minimal pain no bleeding until mid May and it hasn’t stopped since😩 With Covid around I haven’t been able to get a hospital appointment so coping with codeine and heat. No point having hysterectomy as it’s all over so what do I do?? Nothing I’m just going to have to cope, I’m so fed up 😪

[DAML8 in reply to Hidden]

Its awful that we are just left to suffer in this way! They wouldn’t let an animal go through this for so long. My consultant has said that pain relief is my only hope now, nothing has worked so far so im not very optimistic x

[sanpit47]

I’m so sorry to hear you feel there is no cure for Endometriosis. I was diagnosed in my early thirties after 10 years of being fobbed off with other conditions. I was told a total hysterectomy was my only hope after medication and it’s side affects. I’ll cut to the chase with my own story of eliminating endometriosis.

I was introduced to a nutritionist who her self had had health problem and managed to find a way to help her condition through healthy eating and with Vitamins and minerals...

I had nothing to lose and hopefully a lot to gain so I started this regime she personalised for me. It was difficult at first but it became easier as time went on, but I was determined, and this you need to be and it worked for me, I felt healthy, slept well, felt great loads of energy, and lost weight. I’m now 73 I went through my menopause with very little symptoms which I put down to this healthy way of life...

I hope this may give you ladies some much needed hope in helping yourself by this nutritional way forward...

This is my story I hope it may help many of you ladies to lead a pain free life from Endometriosis

Sandra x

So you see

[Skyhigh20]

You have read my mind I feel helpless and frustrated. I just hope for a cure one day to help end this fight for us all.

[DAML8 in reply to Skyhigh20]

Me too. You’d think with today’s technology they would have come up with something by now! I can’t continue like this for the rest of my life..it’s just not fair x

[Anniemag]

Me too - I have one good week in the whole month- does anyone else suffer with extreme cramps with watery diarrhoea? I get this at least once a month 😩

Stay strong everyone

[ChanLuisa in reply to Anniemag]

Yes, in fact it’s my bad week right now feel like I could be sick with the pain - it literally is one good week and 3 crappy weeks

[DAML8 in reply to ChanLuisa]

I can not remember the last pain-free day I had. This is no way to live and it’s not fair they just seem to leave us to suffer x

[ChanLuisa in reply to DAML8]

It’s so rubbish isn’t it, I’m waiting for another ultrasound and consultation visit with gyne but it was all put on hold coz of COVID - it’s because they can’t see it, if it was visible we would all be treated in a totally different manner! X